Feeling I’ll after B12 injections

[Hedgehogs15]

Good morning from England.

A belated Happy New year to you all.

I hope like me you are all coping the best you can with your pernicious anaemia/B12 deficiency.

I am fortunate after 6 years without injections due to a young inapt doctor saying I didn’t need them to now being in the hands of a brilliant GP.

My question today are does anyone still feel rotten 2 weeks in from injections and also I had a pain in my eye last night and three quarters of the white is now red.

No pain today but eye still looks quite alarming.

So pleased I found this forum, like many of you I feel I’m amongst friends.

Take care, thank you for listening.

[Sleepybunny]

Happy New Year to you Hedgehog15,

I was untreated for many years and when I finally started treatment (had to treat myself) it took many weeks of injections to start to see improvements.

As you had a long time (6 years) without injections I guess it would be like starting from scratch again so might take weeks even months to see some significant improvements.

Within one week after an injection my neurological symptoms return so there is no way I could manage on NHS patterns of treatment.

Some people just need more B12. Do you think you are getting enough B12?

Have you talked to your GP about your eye?

Maybe get someone to take a photo of it.

You could also call NHS 111 number if you feel it is urgent

nhs.uk/nhs-services/urgent-...

May also be worth talking to local pharmacist.

[Hedgehogs15 in reply to Sleepybunny]

Afternoon SleepybunnyThank you for taking time to reply.

What you say makes total sense and my doctor is considering increasing my B12 injections to see if there is an improvement.

I really wish some of the medical professionals wouldn’t treat B12 deficiency like it’s not important.

I am speaking to the doctor at 4.40pm today regarding my eye problem.

I hope your health continues to improve and all the very best x

[Sleepybunny in reply to Hedgehogs15]

"my doctor is considering increasing my B12 injections"

That's good news.

If you have neuro symptoms, see section for those with "neurological involvement" in next link.

BNF Hydroxocobalamin

bnf.nice.org.uk/drug/hydrox...

GPs are allowed to prescribe off licence if they feel it is in patients best interest but some may be reluctant to do so.

Link about prescribing off licence

gmc-uk.org/ethical-guidance...

Your GP may find it helpful to look at this page on PAS website for health professionals.

pernicious-anaemia-society....

[Hedgehogs15 in reply to Sleepybunny]

Thank you again and hope all stays well for you x

[Vitb12___]

Hi.. please go to Optician’s and get your eye looked at.. it may just be a little blood vessel bleed which will sort itself but looks horrendous but please just get it looked at.. Opticians are taking routine appointments so all good.. good luck xx

[Hedgehogs15 in reply to Vitb12___]

Thank you for taking time to reply and I will follow up your advice. Best wishes. X

[Nackapan in reply to Hedgehogs15]

My eye hax been like that i did geg it checked out Happened twice. You just reminded me!

[Vitb12___ in reply to Nackapan]

Good luck.. I’m sure your eye will be fine just get it checked xx

[Nackapan in reply to Vitb12___]

Oh it was a while ago .Yes was fine thanks.

Looked alarming though and never before

[Hedgehogs15 in reply to Nackapan]

I really hope you are sorted now and thank you for your time x

[Hedgehogs15 in reply to Hedgehogs15]

It does look alarming and scary when you first see your eye covered in blood x

[PhilAB]

As others have said your body has started to wake up and heal. I am 17 months into everyday injections, and all I can say it has been an experience I would not wish on anyone. However, right now physically I am like a Greek adonis (Even at 48 years old) although my ridiculous diet and large supplements have played a role. I can play exercise without warming up and suffer no consequences like aches and pains. I ran out the other day to play a round of golf, carrying my bag and did not ache at all.Unfortunately not all good news, my brain fog, tiredness still haunts me, but small nerve fibres take 2 years to heal, so trying to stay positive in this dystopian reality I seem to have stumbled into.

[Nackapan in reply to PhilAB]

So glad to hear some good improvements. Noonday tells us how long it can take to see some hope

[Hedgehogs15 in reply to PhilAB]

Hi, it’s comforting to know there is light at the end of the tunnel. Your story is inspiring . Thank you

[PhilAB]

My diet is organic, gluten and dairy free. Inonly eat home cooked healthy food, don’t drink and will nit put any unnatural substance in my body. I also take so many supplements and vitamins, I have my bloods done every 3 to 4 months to check my levels. I also have a close friend who has same condition and has helped me tremendously. I spent and still spend many hours researching medicine.

[Hedgehogs15]

Amazing.