Response to my letter to GP regarding my b12 injections.

[Showgem]

Thank you everyone who gave me advice on writing to my GP. I wrote a firm, detailed but non confrontational letter and he phoned me up and agreed to let me have 12 vials, syringes and needles and will review my treatment in 6 months. He wants me to gradually space my b12 injections out to one a month then later on to every two months. I haven't told him I’m injecting weekly with my own supplies as yet, just told him I’ll try spacing them out.

As he had been insisting on 3 monthly injections I think it’s quite a good result. I’m still waiting to see the neurologist but it doesn’t look as if it’ll be any time soon.

[Hidden]

That was a great result show gem well done for persisting.Maybe you could try supplementing with an oral b12 spray on the days your not injecting when you do try to prolong the frequency and see if that helps? Best of luck.

[Showgem in reply to Hidden]

Thanks, I’ve never tried a spray but as I had both IF & PC antibodies and extremely low b12 at 58 despite having a diet with lots of b12 I assumed that I wouldn’t be able to absorb it from a spray. Perhaps if I find it difficult to source my own supplies I would but I had a delivery from Germany last month so no problem for now.

[Hidden in reply to Showgem]

Gosh that was low wasn’t it.I just meant if you were planning to try and reduce to the frequency gp asked for maybe supplementing with the spray would help fillin those gaps.The spray or tablets don’t do anything for me with p.a but I was surprised how quickly my husbands levels went up,he doesent have p.a he was borderline but no symptoms when we checked his bloods so it was a good thing for him to do.best of luck x

[Showgem in reply to Hidden]

I still have symptoms after almost 2 years so will continue with weekly injections for now. I’ve tried going 2 weeks and my symptoms worsen and it takes me a couple of weeks of weekly injections to get back where I was so I’m not intending to try going longer than weekly again for a while yet. It’s good that the the spray/tablets worked for your husband,

[Hidden in reply to Showgem]

I tried sub-lingual sprays for months until I got hold of ampoules. They did nothing for me until I increased the amount to 25mg a day. Sickly and expensive a t £15 a bottle lasting 2 weeks that at 2.5mg should have lasted more than 4 months.

[fbirder]

Yeah!

We do like success stories.

[olicana1949]

That sounds like a success story. Im interested in how you decided 3 onthly injections were insufficient, what symptoms did you have and what made you decide that more frequent injections were a solution worth testing out.

[Sleepybunny]

Great to have some positive news and I hope your GP continues to be helpful.