Pernicious Anaemia COVID vaccine - Pernicious Anaemi...

Pernicious Anaemia Society

31,951 members23,089 posts

Pernicious Anaemia COVID vaccine

DaveMK1 profile image
16 Replies

Hi...is anyone aware of any guidance on whether it is safe for pa sufferers to have the vaccine? I have seen reports suggesting people with autoimmune conditions should discuss with gps first.

Written by
DaveMK1 profile image
DaveMK1
To view profiles and participate in discussions please or .
Read more about...

The ability to reply to this post has been turned off.

16 Replies
fbirder profile image
fbirder

There is no reason at all why somebody with PA should not have the vaccine.

Some autoimmune diseases are treated with drugs that suppress the immune system. It's possible that their weakened immune systems may not produce the desired response to the vaccine, so that it doesn't work.

As soon as I reach the head of the queue (after the 12 million in front of me have been done) I shall be having my jab.

DaveMK1 profile image
DaveMK1 in reply to fbirder

Thanks...I will also be having it when possible

AmbersMom profile image
AmbersMom

I have multiple autoimmune issues and my GP told me it is best for me to avoid the vaccine for now.

fbirder profile image
fbirder in reply to AmbersMom

Have you asked your doc why they thin k the vaccine may be more harmful than the disease?

Haveitall profile image
Haveitall

If PA is your only diagnosis you should be fine. I have multiple autoimmune diseases so it’s out of the question for me.

LWhelan profile image
LWhelan in reply to Haveitall

Why do you think that? I also have multiple autoimmune diseases and everything I have read suggests there are no issues.

Haveitall profile image
Haveitall in reply to LWhelan

I’ve been advised not to. Plus all vaccines have 25mcg mercury in them as a preservative and I’ve spent a fortune detoxing metals out of my body. I’m thrilled for anyone allowed to get the vaccine as it will help keep me safe.

helvella profile image
helvella in reply to Haveitall

Do you have ANY evidence whatsoever that there is mercury in the Pfizer\BioNTech vaccine?

What COVID-19 mRNA Vaccine BNT162b2 contains

 The active substance is BNT162b2 RNA.

After dilution, the vial contains 5 doses, of 0.3 mL with 30 micrograms mRNA each.

 The other ingredients are:

- ALC-0315 = (4-hydroxybutyl)azanediyl)bis(hexane-6,1-diyl)bis(2-hexyldecanoate),

- ALC-0159 = 2[(polyethylene glycol)-2000]-N,N-ditetradecylacetamide,

- 1,2-Distearoyl-sn-glycero-3-phosphocholine,

- cholesterol,

- potassium chloride,

- potassium dihydrogen phosphate,

- sodium chloride,

- disodium hydrogen phosphate dihydrate,

- sucrose

From the USA's CDC in 2018:

Current Status of Thimerosal in Vaccines

The use of thimerosal as a preservative in U.S. FDA-licensed vaccines has significantly declined due to reformulation and development of new vaccines presented in single-dose containers.

All vaccines routinely recommended for children 6 years of age and younger in the U.S. are available in formulations that do not contain thimerosal.

As with pediatric vaccines, vaccines for adolescents and adults are available in formulations that do not contain thimerosal. (Note- one vaccine, Tetanus and Diphtheria Toxoids Adsorbed, single-dose presentation, manufactured by Mass Biologics utilizes thimerosal as part of its manufacturing process, not as a preservative, and a trace remains in the final presentation).

FDA-approved seasonal influenza vaccines are available in single-dose presentations that do not contain thimerosal as a preservative for use in infants, children, adults, the elderly and pregnant women. (Note- one vaccine, Fluvirin’s single-dose presentation utilizes thimerosal as part of its manufacturing process, not as a preservative, and a trace remains in the final presentation). Vaccines with trace amounts of thimerosal contain 1 microgram or less of mercury per dose.

The CDC’s ACIP does not preferentially recommend vaccines that do not contain thimerosal for any populations.

fda.gov/vaccines-blood-biol...

Gambit62 profile image
Gambit62Administrator

I am aware that some people with allergic reactions (different to auto-immune) have had bad reactions to the vaccine and there is some cautionary advice around patients with severe allergies eg people who carry epi-pens. I am not aware of anything to indicate that auto-immune conditions are problematic.

helvella profile image
helvella in reply to Gambit62

In case anyone wishes to read them, the MHRA public documents for the Pfizer/BioNTech vaccine are available on links from here:

gov.uk/government/publicati...

Bellabab profile image
Bellabab

The vaccine has been fully tested. It has been speeded up only because the whole scientific community have worked flat out on it.

fbirder profile image
fbirder

What has been skipped?

Nothing at all.

One of the reasons it normally takes years to develop a vaccine is because they do everything in sequence.

They find a candidate, then ask for funding to do small scale animal testing. Then write up the results and publish it. Then they ask for funding for safety testing in a small group of humans. Then they do the testing. Then they write it up and publish the results. Then they ask for funding for a study in hundreds of humans. Then they do the testing. Then they write it up and publish the results. Then they ask for funding for testing in tens of thousands of humans. Then they try to find somebody to make a hundred thousand doses of the vaccine. Then they do the test. Then they write it up and publish the results. Then they ask for a license for it. Only then do they try to find somebody to make millions or billions of doses.

That’s why it normally takes years.

For covid-19 vaccines the good candidates got promises of funding while they were still doing the animal studies. They got hundreds of thousands of doses made when they started small human studies. They didn’t have to spend a year, or more, trying to find funding for each phase.

Indeed, they didn’t wait for one phase to finish before starting another. Once animal studies and small-scale human trials had shown it to be very likely safe, then they started doing the intermediate-scale and large-scale studies are the same time.

So they’ve spent as much time on each phase of testing as they would have done before. But they’ve not wasted time between each phase. That’s how they’ve cut the development time down so drastically.

When people talk of long term safety testing they are probably referring to Phase IV testing. Phase I is safety testing in small numbers of volunteers. Phase II is testing for efficacy in a few hundred volunteers. Phase III tests for safety and efficacy bin tens of thousands. Phase IV is done in much larger numbers - of real patients, after the drug/vaccine has been licensed. In this case civid-19 vaccines are being tested in exactly the same way as other vaccines. Phase IV testing goes on for years.

The other reason this vaccine was faster than any other is genetic biology. In the past a vaccine candidate would have to be made by trying to inactivate a live virus, or bits of a virus. It was very much trial and error.

In January 2020 the Chinese emailed the RNA sequence of SARS-CoV-2 around the world. Three hours later one researcher had already developed a vaccine candidate based on the spike protein. Three hours for a process that used to take years!

helvella profile image
helvella

I have just added an extract from a USA FDA document.

I am afraid that claiming Covid-19 vaccines contain mercury when there is no evidence does not seem to be the ideal way of helping people to make up their minds.

By all means make your own choice on any basis you like. You might be absolutely right to avoid it because you have Lyme and /or any other disorders. Horrible disease to suffer from.

Foggyme profile image
FoggymeAdministrator

DaveMK1.

I agree with fbirder - there’s no reason why anyone with PA should not have the vaccine.

I have several autoimmune conditions (lupus being one), am on immunosuppressants and steroids.

I have been advised that it’s safe for me to have the vaccine. In fact it’s safer for me to do so.

I will be having the vaccine as soon as it’s offered. The quicker the better.

Anyone reading this thread. Please do not be put off having the vaccination by anything you may read here.

If in doubt about your personal medical situation and how this may (or may not) impact, please discuss with your GP, consultant or specialist.

Take care and keep safe all x

Gambit62 profile image
Gambit62Administrator

DaveMK1 - closing this post to further responses as some of the responses are wondering off topic for the forum and going beyond your original question.If anyone has any doubts about the vaccine then, as you say, discuss with GP/medical practitioner first.

Foggyme profile image
FoggymeAdministrator

All - please be aware that some responses in this string have been moderated and deleted so some of the remaining responses may appear out of context.

These have not been deleted since the posters went to some effort to present accurate information which, although off topic, were written in response to comments others made. Left on the post for information purposes.

As before, now closing this post to further replies.

The ability to reply to this post has been turned off.

You may also like...

Pernicious Anaemia and Covid Treatments

both an autoimmune and an inflamatory condition? PA also seems to have left me unable to fight any...

Pernicious anaemia and covid

my four weeklyB12 injection last week because I have pernicious anaemia. I feel really poorly and...

Is it Pernicious Anaemia or not.

hold a cup of tea, or brush my teeth without any brake. I have alo Hashimoto & depression for the...

? Pernicious anaemia with normal B12 and no anaemia?

that can also cause them) However his bloods have come back as follows: Hb 135 g/L (130 -...

Atypical Pernicious Anaemia

Hi All, If you have any spare time...I found some interesting articles when I searched online for...