Finally getting a referral

[Zc66]

Hello everyone,

Had recent check on b12 again after pestering my GP about my symptoms.

I have been self injecting but last did and injection end of April because of my skin but also because i knew i would be getting bloods done as soon as covid relaxed a little, b12 was still 1400! So obviously my GP was shocked, i didnt mention i had SI i said i had used lots of patches and sublingual.

But this GP i saw (not one i have ever seen) has sent a refferal to the neurologist.... finally after trying since October last year, my question do i tell them i SI? to explaing why my levels are so high.

Annoying as GP i just saw said that when i was first tested i was 2 points off of being classed as deficient, he would have suggested to test again in a month and if it had dropped some more he would have treated... but now cant as my levels are high, which i read b12 testing will be useless now anyways aftet injecting, Feel i have shot myslef in the foot a little 😑

[fbirder]

I would come clean to the neurologist about the SI. Otherwise they may go down a few blind alleys.

[Zc66 in reply to fbirder]

Thankyou for always replying 😊

I will tell them.

[Nackapan]

I dont think you have. Tou could've been alot more ill if you hadnt self treated.

You need to tell the neurologist.

Also explain why as you were not getting treated and then covid19 hit.

[Zc66 in reply to Nackapan]

Thanks for always replying also 😁 i will tell them.

[Hidden]

Hopefully you feel better from the b12 injections? I would give the neurologist a list of the symptoms you had before you self injected and which ones have improved and by how much. I do hope your appointment goes well.

[Zc66 in reply to Hidden]

Yes i did feel so much better than i did ...but not injected now since end of april and the nerve and bone pains are creeping back with tinitus and weekness. I will make a lost before i go so i dont forget any thung and i will tell them all 😁

Thank you

[pitney]

I agree with fbirder, I told my GP that I was SI right from when I started doing it one or two of the doctors at my surgery do not like it and always try to get me to go back to the 3 monthly treatment but I just dig in my heels and say how much I have improved by doing myself every month and that I know it's not dangerous in me doing that. I think its always best to be up front with your GP even if it causes a bit of friction as then at least they know you are being honest.

Good luck and best wishes

[TFH1]

I would be unapologetically honest with all concerned - if GP thinks you got a b12 level that high without injecting he will understandably think you have no problem with absorption. Why hide it? You made a solid decision to inject based on your symptoms and as much as it may annoy your GP that you took matters into your own hands, it's not him who has to live with your symptoms is it? A patient who has taken the time and trouble to do the research themselves, get on the support groups, order the medication from Germany, master self injecting etc is a patient who was a) Suffering and b) Not getting the support they needed from their medical service.