If active B12 is well in range, do you not need to increase injections?

[Ctb567]

It took me ages to get B12 injections on the NHS and I was never properly diagnosed with anything, IF and GPC were negative and I was put on B12 injections every 3 months for life. I was diagnosed at a B12 level of 105 and I'm not vegan, anorexic etc

This was 5 years ago however I wonder whether my deficiency was treated properly. I have had neurological symptoms until the 6 weeks in-between the hospital consultant taking my blood and then giving me injections, because of this I never had neurological symptoms officially listed and I just got the standard B12 treatment, 6 loading doses in 2 weeks then injections every 3 months. I never felt amazing after getting these injections, I did start to feel better after a few months of them but it wasn't an amazing change. They got rid of the obvious neurological symptoms, all the warts on my hands and I stopped getting sores on my lips but that was about it, most of these symptoms only came on a year before I was diagnosed after years of having low b12. I also notice after I get an injection I get a load of new baby hairs growing on my head (hair growing at the front of my scalp on my hair line).

The symptom I was really hoping to get rid of was my severe dry eyes, I have had a million blood tests to get this diagnosed however everything comes back fine, the only thing that has ever come back abnormal was the B12. I have had my active b12 tested and it is well within the normal range, does this mean the issue definitely isn't B12?

I was considering doing some extra loading doses to see if this is the issue, like maybe giving myself injections every week for a month to see if it does anything however I don't want to do this if it's completely unneccessary. Has anyone ever had any luck giving themselves extra injections?

Thanks

[Nackapan]

My level was very similar to yours 18m ago with many severe neurological problems.

I'm currently on 2 weekly b12 I jections . I tried 3 weekly 5 times but it set me back. I tried going back to weekly but got ill?? Maybe repair but too debilitating.

High b12 levels on blood test mean nothing once on injections unless 3-4 months ? After injection. Or levrk dropped

Go by your symptoms.

Have you had other vitamins and folate and ferritin and thyroid tested on bloods.

I was told b12 3 monthly for life. I havent yet got to a 3 monthly Inection and doubt I never will now.

Its finding a frequency that you can tolerate and keeps the healing up.

So no easy answer.

The very thing you are thinking about doing it appears to show a need .

I would personally di a blood test first when able.

Decide on an Injection regime and stick with it for a while as you know its never in a linear line .

Dry eyes may be a separate issue if b12 after all this time hast helped.

Try and see after all it wont

Look into your supplements too.

[audreypamela]

Have you been tested for sjorgens no expert but I know it causes dry eyes.