Some hope for those who have had canc... - Pernicious Anaemi...

Pernicious Anaemia Society

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Some hope for those who have had cancelled appointments.

filmfanatic33 profile image
15 Replies

Hi all,

I believe this is my first post on here so I hope I'm doing this correctly. My B12 jab was cancelled like so many others on the 27th of March, and 2 weeks later I have found myself in a real state trying to cope without. So I thought I would try my GP and let them know that I was struggling and see if by any chance I could get in. Well low and behold I have an appointment booked in for this Friday, after them having told me that they are now "doing them again". I've not seen any other posts like this one but if I am repeating the already known then I apologise, however the point here is to let you know it may be possible to book up again now. I'm on the south Yorkshire area if that helps anyone considering phoning up to get back in. My support and thought go out to you all and I hope you are all managing well. - Joe

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15 Replies
Nackapan profile image
Nackapan

Very pleased to hear you will get your I jection.

It appears to be different in every area and in every surgery.

There is s drive to treat everyone with tablets.

God can make their own decisions on clinical need always have been able to. Si good you managed to get through and good to encourage others to try too.

Hope it does its work for you.

Nackapan profile image
Nackapan in reply toNackapan

God lol I meant Gp.( Freudian slip!)

filmfanatic33 profile image
filmfanatic33 in reply toNackapan

Well they do sometimes think that they are god! Thank for your kindness, have you had any success yourself?

Nackapan profile image
Nackapan in reply tofilmfanatic33

Yes I'm having mine at the surgery. Refused to let me have a prescription for subcutaneous or intermuscular. to do at home. Did get some supplies in as no idea how long they will honour this . Appointment cancelled through lack of staff fotr next one says to rearrange .

Fedup2020 profile image
Fedup2020 in reply toNackapan

Can I ask where you got yoursupply of b12 for jabs as tbh would really like to know. Thanks.

Sleepybunny profile image
Sleepybunny

Hi,

So pleased to hear that you have got your injection.

pitney profile image
pitney

well done :)

Strawberrypie profile image
Strawberrypie

That’s brilliant for you, there seem to be some who are getting them fortunately. My appointment was booked for today, got a cancellation text yesterday which said to rebook when the Covid 19 restrictions are lifted, no offer of tablets or anything else. It’s only my first one since my loading dose which wasn’t handled properly either ☹️

fbirder profile image
fbirder in reply toStrawberrypie

Ring them.

Tell them you are worried about nerve damage. If that doesn't work write to them and say your are worried about nerve damage. cc a copy to the local newspaper.

The local papers will be looking for a local slant on the covid-19 pandemic. Anything personal will go down really well.

Here's an example - eveningtelegraph.co.uk/fp/i...

It might not get your injections reinstated (because of morons like those in NHS Tayside) but there's a chance it will if they get sufficient pressure.

Sleepybunny profile image
Sleepybunny in reply toStrawberrypie

Hi,

Have a look at my post in link below to another forum thread which has some useful info on injections being stopped.

healthunlocked.com/pasoc/po...

There are a lot of recent threads on the forum about this issue.

filmfanatic33 profile image
filmfanatic33

I simply can't comprehend the total lack of care regarding our respective injections. Too many GP's / nurses even just think its a nice top up, but for all of us it's life. I can't function properly if I've had a very active month and then get a delayed jab, it's awful. I did exactly as fbirder suggested (minus the newspaper contact, however it would seem like a good idea) made the point of how awful I feel and they were quick to arrange it for me. It's the best option we have I feel!

filmfanatic33 profile image
filmfanatic33

Just wanted to offer my thanks for all the kind messages. Its nice to find such a wonderful community that all get it! I sincerely hope for all your sakes that these letters sent by the society begin to have a wider impact for you. You're all in my thoughts.

Cherylclaire profile image
CherylclaireForum Support

Yes, you are doing it correctly, and welcome Joe. That is wonderful news.

Let's hope other practices are able to follow suit soon.

Perhaps during this outbreak, some practices will learn something : find themselves more aware of how absolutely necessary B12 injections are and how quickly some deteriorate without them. Also they might notice that tablets are not going to do the trick for everyone.

Please, everyone, if your injections have been stopped / your injections have been replaced with tablets and you find that this is not working for you :

Don't prolong deterioration because....

a) you are worried about making a fuss during the pandemic

b) you are frightened of going out to the surgery

c) you think they won't care

d) you think symptoms need to be worse before they will help you

If you don't tell them, they won't know you need help.

Sleepybunny profile image
Sleepybunny

Hi filmfanatic33,

Have a look at my post on the thread I've linked to below. I hope you'll find some useful info in case your injections are stopped due to impact of pandemic in the future.

healthunlocked.com/pasoc/po...

F1lligree profile image
F1lligree

My surgery is closed but my local health authority (Barts Trust, Waltham Forest) are running regular nurse clinics via the out of hours service, so managed to get an appointment with them at another surgery. Had to get a prescription for the injection itself and confirm earlier in the day that I have no covid symptoms, but was actually easier than normal to get it sorted.

It was lovely to have such a stress free experience compared to normal, especially given how much pressure the NHS is under at the moment. I hope those who are struggling manage to find a route through.

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