Vit B12 below 150 diagnosed 5 months back.Struggling with extreme fatigue and head symptoms. Unable to concentrate . On weekly injections . Is there any hope of getting my energy back.
Thank you so much.
Vit B12 below 150 diagnosed 5 months back.Struggling with extreme fatigue and head symptoms. Unable to concentrate . On weekly injections . Is there any hope of getting my energy back.
Thank you so much.
It takes time pacing and alot of patience.
I've tried pushing through my normal way and it bot only doesn't work but sets me back.
Raising ferritin and vitamins d levels helped me. Not to stupid levels just higher on whats deemed correct
5 months ibrraluae feels a long time but it's really only the start for many. I'm on 14 months starting with a serum b12 level of 106.
Can walk 1/2 mile but any further I pay for it. Am doing a bit more cooking for the freezer to get 'days off' so can try other things. I used to be too busy .
Hooe it comes together at an acceptable level for you in the new year. T c
Are you in the UK peace1234 ?
It may be that you need more frequent B12 injections. What type are you being given?
Do you know your Folate level?
I'm in US, Clivealive. My folate is 14.7.
No loading doses just once a week cyanocobalamin injections all this time.
Now my B12 is 1000 but I still feel drained and no improvement in my symptoms.
You think I need more frequently?
But I would feel awful for 2 to 3 days after each injection.
Hi,
I hope you soon start to see an improvement in energy levels.
Links to some B12 websites
PAS (Pernicious Anaemia Society)
Based in Wales, UK. Has members in other countries.
pernicious-anaemia-society....
PAS tel no +44 (0)1656 769717 answerphone
B12 Deficiency Info website
B12 Awareness (US website)
Stichting B12 Tekort (Dutch website with English articles)
stichtingb12tekort.nl/weten...
B12 books I found useful
"What You Need to Know About Pernicious Anaemia and B12 Deficiency" by Martyn Hooper
Martyn Hooper is the chair of PAS (Pernicious Anaemia Society).
"Living with Pernicious Anaemia and Vitamin B12 Deficiency" by Martyn Hooper
Has several case studies.
"Could it Be B12?: An Epidemic of Misdiagnoses" by Sally Pacholok and JJ. Stuart (USA authors)
Very comprehensive with lots of case studies. There is also a paediatric version of this book "Could It Be B12? Paediatric Edition: What Every Parent Needs to Know".
The idea of "loading doses" as given here in the U.K. is to flood your bloodstream with B12 until there is no further improvement in your symptoms.
This may take quite a while for the B12 to repair the damage done to your nerve endings caused by the deficiency and indeed it is possible to feel worse before you get any better.
You may have read on here about three monthly maintenance injections but they are talking about hydroxocobamalin which is "deemed" to stay longer in the bloodstream. You are being treated with cyanocobamalin which needs to be given every four weeks for maintenance purposes.
There is life after B12 deficiency given the correct and ongoing treatment as I have had P.A. for over 47 years with monthly injections of cyanocobamalin and I'm still "clivealive" aged 78
I wish you well
It's very inspiring to know that you had it for 47 years and doing well. What are the maximum physical activities that one can do? I feel so low now that I need to hang on that ray of hope.
With gratitude.
Learn to be a patient patient and try not to over-reach yourself. I was told I needed a sedentary job so I had to give up my career as an electrician and retrained as an accountant.
At that time of diagnosis of P.A. I had two daughter under six, a sick wife with heart problems and I was like a walking Zombie.
The B12 injections are not an overnight cure but God Willing improvement will come in due time.
Goodnight from the UK - it's my bedtime
Hi peace 1234
I am in the US. I was diagnosed in 2016 with PA. My b12 was 164. I started out with 5 days of cyanocobalamin injection, then went to 2 weeks then to once a month. None of this was enough. I finally convinced my doctor to give me injections once a week. Still this was not enough. So now I self inject twice a week and this has done wonders for my energy. I have been doing twice a week for almost a year. For the last month I feel like a normal person. I’m not sluggish when I wake up in the morning. I can do more than usual without getting tired. I still don’t over do it. Because if I do, I spend the next day in bed.
It will take a while to feel better.
I also take vitamin d, folic acid, magnesium and a multi vitamin.
Hang in there.
Camphillgirl
Yes I think there is definitely hope.
I was diagnosed in June and am feeling a lot better. I still can't do too much but if I pace myself I can function through a normal day and my head is a lot better.
I try to eat as healthily as I can too
Yes, it will come back--took me about 18 months to get most of it back with weekly shots.