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Help b12 questions

Drassum profile image
8 Replies

Hi all have been really struggling to get b12 injections done again after they were stopped after loading doses two years ago have now been given loading doses again followed by injection every 3 months but am feeling really ill before 12 weeks is up any one tell me weather should take folic acid as well have neurological symptoms really bad weakness in legs and pin needles in hands and feet please anyone with advice answer me am really desperate to fill well for once much appreciated thanks.

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Drassum
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8 Replies
Emmers5 profile image
Emmers5

So terribly sorry you are suffering! If you are having neurological symptoms then your injections are not frequent enough. There is a great deal of information on this site, posted by people much more knowledgeable than I, so be sure to explore. This community is a supportive helpful place, don't give up.

Drassum profile image
Drassum in reply toEmmers5

Thanks emmers5 will battle on and hopefully get what is needed

clivealive profile image
clivealiveForum Support

Hi Drassum make a list of your symptoms, give this to your doctor and ask him to check the latest B.N.F guidelines on the frequency of B12 injections per the link below,

bnf.nice.org.uk/drug/hydrox...

Read down from "Indications and Dose"

In addition ask to have your Folate level checked,

I am not a medically trained person.

I wish you well.

Drassum profile image
Drassum in reply toclivealive

Thank you Clive alive have done what you suggested hopefully will get a response soon

Nackapan profile image
Nackapan

I would try giving your injections 2 monthly . Bnf guidelines as you shouldn't have difficulty getting them.

See how you go and fight for more if needed. Keeo a diary of symptoms.

Drassum profile image
Drassum in reply toNackapan

Thank you for advice have done all suggested

Sleepybunny profile image
Sleepybunny

Hi,

I've written a detailed reply in the link below with lots of links to B12 info eg B12 websites, B12 books, UK B12 documents etc

healthunlocked.com/pasoc/po...

Hopefully there'll be something of use to you.

Drassum profile image
Drassum in reply toSleepybunny

Hi sleepy bunny thank you for advice and all the links very interesting reading am really moviated to get what I need thank you

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