Hello: Just saying hello - Pernicious Anaemi...

Pernicious Anaemia Society

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Hello

Lantonlass profile image
10 Replies

Just saying hello

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Lantonlass profile image
Lantonlass
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10 Replies
fbirder profile image
fbirder

Hi.

Momac52 profile image
Momac52

Hi there 😊😊

Nackapan profile image
Nackapan

Hello. Hope you are functioning well .

Lantonlass profile image
Lantonlass in reply toNackapan

I am doing fine thanks. Get a bit tired however that may be my age 😃

Sleepybunny profile image
Sleepybunny

Hello, welcome to the forum.

Hope you're getting adequate treatment.

Lantonlass profile image
Lantonlass in reply toSleepybunny

Hi think I must be getting the right treatment as the only problem I have is getting tired think this more to do with age. How are you

Sleepybunny profile image
Sleepybunny in reply toLantonlass

I'm okay thank you; in fact the best I've been for years but now having to cope with the start of menopausal symptoms.

"think I must be getting the right treatment "

How often do you get your B12 injections and how many loading doses did you get at start of treatment?

1) UK recommended treatment for B12 deficiency without neuro symptoms is ...

6 B12 loading jabs over 2 weeks followed by a jab every 2 or 3 months

2) UK recommended treatment for B12 deficiency WITH neuro symptoms is ...

A B12 loading jab every other day for as long as symptoms continue to get better then a jab every 2 months

If you had neurological symptoms when treatment started or they have developed since , my understanding (I'm not medically trained)is that you should be on the second treatment pattern.

See links below for more info on UK B12 treatment

BSH Cobalamin and Folate Guidelines

b-s-h.org.uk/guidelines/gui...

BNF

bnf.nice.org.uk/drug/hydrox...

NICE CKS

cks.nice.org.uk/anaemia-b12...

PAS (Pernicious Anaemia Society)

Based in Wales, UK.

pernicious-anaemia-society....

PAS tel no 01656 769717 answerphone

PAS support groups in UK

pernicious-anaemia-society....

B12 Deficiency Info website

b12deficiency.info/

I've written other much longer replies recently which may be worth searching for.

More B12 info in pinned posts on forum.

claudette profile image
claudette

Hi - saw your message and couldn't help BUT reply. That is sooo cute!! I'm not on as much as I used to be but have to say that this site is fantastic. I've opened up many a friend's eyes with all the info this site has; hope it has been the same for you. ENJOY THE REST OF YOUR DAY.

Lantonlass profile image
Lantonlass in reply toclaudette

Yes I agree the site is useful

Ryaan profile image
Ryaan

Hello.....Nice to hear you’re doing well.

👍

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