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returning symptoms? pins and needles in arms when lying down?

GastritisB12 profile image
9 Replies

I am starting to get pins and needles and dead arms when lying down, its not helping me to sleep. Does this mean symptoms are coming back?

Is it possible for paresthesia related to B12 to come and go like this, ie only when lying down?

I used to get this when I was deficient and during initial treatment. Now I am on 3-monthly B12 from the NHS, topped up monthly by self-injection.

This month I have pushed it to 5 weeks thinking maybe I don't need it so often, but now I'm thinking maybe I do?

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GastritisB12
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9 Replies
Nackapan profile image
Nackapan

If the symptoms are what you personally have experienced before you may well be right with the frequency of injections. It may be you've done more recently? You know your body

GastritisB12 profile image
GastritisB12 in reply to Nackapan

Thanks, I probably do need another one. Its just that symptoms return so gradually its hard to be sure.

I was curious if anyone else had intermittent hand numbness I thought it was supposed to be all the time? Strange that it comes and goes. Walking makes it go away more but lying down or sitting still for a long time makes the hands/arms go numb or start tingling.

nyssa62 profile image
nyssa62 in reply to GastritisB12

I also have had intermittent hand numbness and tingling. My ring and little fingers are the most affected and it's always after I've been lying down or sitting for awhile. It's one of the reasons I knew I needed B12 injections again. It's also how I realized that - even though I've kept a health-related diary since my PA diagnosis - I hadn't been including enough detail about my symptoms.

GastritisB12 profile image
GastritisB12 in reply to nyssa62

Thanks very much for posting, that's reassured me I'm not the only one with intermittent tingling. I'm going to SI another B12 I'm not waiting for more symptoms to come back.

Keke83 profile image
Keke83 in reply to GastritisB12

I get the same thing GastritisB12, intermittent hand numbness, particularly if I’m using computer which makes it very hard to get my work done!

GastritisB12 profile image
GastritisB12 in reply to Keke83

Thanks! Me too!

Dickydon profile image
Dickydon

Sounds like you need a Serum B12 blood test to see where you are sitting within the range. (200-900)

GastritisB12 profile image
GastritisB12 in reply to Dickydon

Yes I thought about that, but I just couldn't wait so I took a B12. Maybe next time after 1 month I'll have a blood test just to see how it drops after 1 month.

pvanderaa profile image
pvanderaa

Yes - ring and pinky fingers go numb or tingle - both hands when lying down. I was attributing it to blood flow. I can usually get it to go away with a few exercises.

But, I’ll have to pay attention if it is also happening when I’m on the computer.

Since it is both arms at the same time, it must be in the spine. Laying on one side or the other doesn’t make it go away like blood flow would do.

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