Loosing weight : Does anyone have... - Pernicious Anaemi...

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Loosing weight

Budsha profile image
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Does anyone have problem with there weight I've lost a lot lately and I'm not actually the not the biggest person so my DR is keeping eye on it I'm eating lots.I'm on injection at moment every 4wks energy level are slowly going back up but still have sore toes, mouth ulcer,nails keep breaking and sore joints.

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Budsha profile image
Budsha
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Freezeframe profile image
Freezeframe

I am just coming out of my loading phase. Lost my appetite and nearly 25 pounds! I am not a big woman so it’s very concerning to me. I force myself to eat ( healthy) but have been eating pints of ice cream just to keep the weight on. My main symptom was a very sore red beefy tongue. After a dozen injections it looks and feels better .Better color and the sores have decreased as well as the size. Hard to eat with a big painful tongue. Ugh But I think it’s going to take time for things to heal. In the meantime I should be thankful I was born after they discovered how to treat Pernicious Anaemia 🙏🏻

Some people who have PA find it difficult to absorb nutrients. Like you I lost a lot of weight after being diagnosed. My GP and gastro did everyvtest under the sun. Like you I atevlots just to stop losing weight. Eventually they found out I had exocrine pancreatic insufficiency. It’s vdry easy to test for and it’s very under diagnosed. I wish you well.

Nackapan profile image
Nackapan in reply to

I've lost 111bs. I was not overweight at the start. Fortunately plateaued now. I find I have to eat very regularly as otherwise shake. I think for me the every other day Injections I'm on presently has speeded up my metabolism. Im not able to do much so not burning it off that way. But healing uses calories I expect. I've probably got muscle wastage too. Weak enough without weight loss!! I'm eating more diary and nuts and liver!!

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