Exhaustion: I'm moving around a bit... - Pernicious Anaemi...

Pernicious Anaemia Society

32,672 members24,065 posts

Exhaustion

Nackapan profile image
6 Replies

I'm moving around a bit more on the house. The exhaustion continues. Legs so weak. Also vision still down and can't watch TV. Light sensitivity continues.

I'm grateful some improvements and sleeping better with less u comfortable symptoms.

It's simple so slow though. Does this ring a bell with anyone?

Due first maintenance B12 injection 11th January. Could get one sooner. Taking B12 folic acid vit c and d.

Copied into neurologists letter to G.p

He wants an Mri on cervical-thoracic spine

Also says B12 defiency is also known to cause neurological deficits including myeleopathy but this would not explain all of her symptoms? I think he referring to weaknees. Also encouraging me to try amytriptyline. I am sleeping okay now. I think he is thinking anxiety! ! Yes I've some. But everyone has. I've never felt this fatigued before or had such a pale colour. Ashen on doing anything. Even the telephone leaves vibrations in my head. So some improvement 1 month post loading doses. I still am having the odd horrible spots from injection . I take it there is plenty still in symptom as getting new spots!

Written by
Nackapan profile image
Nackapan
To view profiles and participate in discussions please or .
Read more about...
6 Replies
Annnon58 profile image
Annnon58

Hi Nackapan , b12 tablets will not help as you can’t absorb them . You need to self inject like most people on here are forced to due to doctors not following the guidelines . You need alternative day injections until no futher improvement . I know it’s daunting but you could start off with Sub cut ( tiny thin needle ) . I hope you feel better soon, take care .

Nackapan profile image
Nackapan in reply toAnnnon58

Yes it keeps coming back to self injecting. I don't know if I can absorb any B12 though. I got very low but wasn't taking supplements. So I thought I'd try

Annnon58 profile image
Annnon58 in reply toNackapan

If you eat meat , animal products and still have a low level of b12 then you can’t absorb it in your gut , therefore the only way to get b12 to your cell level,is via injections , and due to your nurological symptoms you need them much more frequently than every 8 weeks . If you tried SI it can do no harm as b12 is water soluble and just a vitamin , any excess is excreted in urine . Order yourself some tonight online before it’s too late with xmas post , it will be the best xmas present , controlling your own recovery . Many have given you the same advise , I urge you not to ignore it . You will get lots of guidance here on where to / what to order etc . It will take time and patience but you will recover if you follow the guidelines . All the best .

Nackapan profile image
Nackapan in reply toAnnnon58

That was meant to read I could not get more injections. The gp said I did not fulfil the criteria as the blood test showed ni anti body for intrinsic factor so don't have peracious anaemia or megoblactic. I did arguenjoy on the neurological symptoms but he stated I was so ill to wait for B12 in my system to keep working

Annnon58 profile image
Annnon58

Exactly , the IF test often has false negatives .

Nackapan profile image
Nackapan in reply toAnnnon58

Thanks for all replies. X

Not what you're looking for?

You may also like...

How to deal with exhaustion

Morning. I'm a 47 year old woman diagnosed with PA and B12 deficiency about 7 years ago....
Curlywoo profile image

Re Confused

I had my blood test back today my B12 was 125. so the Dr said he agreed re a possible b12...

Doc says no to more B12

Hello Everyone !!! I'm relatively new here but have posted before. In May I was diagnosed with PA...
maymay28 profile image

Vitamins

Still trying to get functioning. I'm trying g a new multivit aimed at post menopausal women. I got...
Nackapan profile image

PA, deficiency and anxiety

Hi. I'm new here. I've had about four major episodes of anxiety and depression in my life. I'm 38...
Nadpa profile image

Moderation team

See all
Gambit62 profile image
Gambit62Administrator
Foggyme profile image
FoggymeAdministrator
taka profile image
takaAdministrator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.