Bone Pain: Do any of you lovely people... - Pernicious Anaemi...

Pernicious Anaemia Society

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Bone Pain

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Do any of you lovely people suffer with bone pain as a result of B12D? For a few months now I’ve suffered from upper back pain between shoulder blades and also odd occasional pains in my ribs. My GP doesn’t know what it is and has now given me a Bence Jones test to see if I have mylenoma so that’s got me so worried. I’m hoping it’s more nerve pain (my muscles feel cramped) too. Any insight would be welcome. I will get my results in a couple of weeks.

4 Replies
SORRELHIPPO profile image
SORRELHIPPO

I have pain in those areas, investigation told that I have Osteoporosis, (knew this already) However a combination of this in spine and Osteoarthritic changes in neck and upper spine are the cause of the pain I get.

in reply to SORRELHIPPO

Thanks for your reply. I hope you’re getting the support you need. Keep well.

deniseinmilden profile image
deniseinmilden

It is possible. Are you getting enough of other vitamins and minerals? Several other deficiencies can cause these sort of problems too and if anything is limiting it will stop your B12 from working properly as well, which can lead to nerve damage.

Iron and folate come to mind... And it could even be as specific as heme iron from red meat and fish, and methylfolate (available as tablets).

You are likely to benefit from a broad spectrum multivitamin and mineral supplement - plus extra folate, potassium, magnesium and iron if you are getting regular B12 jabs.

Definitely good to get other things ruled out too though because you will then have peace of mind on that score.

If they think everything else is fine then you can try increasing your jabs and supporting supplements and see if that helps.

in reply to deniseinmilden

Thanks denisemilden very good to hear from you. I do SI once every two weeks and was on folate 5mg for a couple of months but now just take a B complex vitamin which has enough folate in it. I take separate K2 and Vit C. My potassium and magnesium checked out as ok and my Vit D is in high normal range after taking a supplement for that. Do you think I need something different? Sounds like a more broad spectrum multivitamin would work better? Thanks for your help. Much appreciated.

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