Getting better with time.: Well it's... - Pernicious Anaemi...

Pernicious Anaemia Society

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Getting better with time.

Geckowacko profile image
7 Replies

Well it's been a while, but here I am still alive and getting better and better.

the pain I have subsided by about 70% and the burning sensation through my body is hardly nonexistent.

Sight improved.

Conditioning improved.

Three months into treatment. Still have allot of tingling going on. Neurological symptoms may improve over the following years, I do hope so.

One thing that still is a nightmare is the insomnia.

I eat clonazepam 0.5mg and 150mg trazodone. I'm now dependant on the clonazepam and like to wean off. Think I'm gonna give seroquel a chance, a dangerous choice, but the inability to sleep drives me nuts for the past months.

Still I'm able to hit the gym aerobic exercises 1 hour to one and half. Before wouldn't last 5 minutes.

Also do yoga, mindfulness. Wim hof method.

Problem, I'm traumatized by the situation over nearing my death and pain from the defeciency. Think that's why I can't sleep for the main part. The pain was mostly during night time a hassle and my body still seems to panic about this.

Things are much better, hope just to beat this damn insomnia. I'm able to enjoy life again though, before I just wanted to die every second.

B12 injections saved my life.

Peace.

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Geckowacko
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7 Replies
Geckowacko profile image
Geckowacko

Previous post.

healthunlocked.com/pasoc/po...

clivealive profile image
clivealiveForum Support

An encouraging read Geckowacko I hope the improvements continue.

Best regards

MoKayD profile image
MoKayD

Since I started my B12 shots I've noticed that if I don't consume enough calcium, magnesium, and potassium I will have trouble sleeping. Most evenings I have an after dinner snack of a magnesium supplement washed down with a glass of milk. I will also eat either a banana or some other potassium rich food. This combination seems to make me sleepy.

Geckowacko profile image
Geckowacko in reply toMoKayD

Already trying those, except the banana part, I use honey.

cdragin profile image
cdragin

I was suffering from insomnia and tried a number of things, none of which helped in any consistent way. Then I read something about insomnia vs. circadian rhythm disorder, and it clicked for me. Now I do three things: (1) make sure I get 1-2 hours of early morning sunlight. This is easy for me because I'm semi-retired and work at home; I take my coffee in the yard (or east-facing room if it's raining), and spend at least a minute simply staring at the eastern sky. I extend my time either with yard work or doing Spanish lessons using a phone app while exposed to eastern sunlight. (2) I take melatonin, but NOT how I was trying it for insomnia, which never worked. Instead of popping a 5mg tablet before bed, or in the middle of the night, it was suggested to take 0.25mg 4-8 hours before bed. With some experimentation I've found 0.5mg at 7:30 at night works best for me. (3) After dinner (around the same time I take the melatonin) I use blue blocker sun glasses if I'm doing anything that requires more than dim light (e.g. reading), or anything with a screen (e.g. watching TV).

The difference has been amazing. It worked immediately, the very first night. I have not had a night of insomnia or had to take a sleeping pill since.

Geckowacko profile image
Geckowacko in reply tocdragin

Wow, great job at finding your thing. I'm already doing all the tips and it has not worked in my case, I suffer still since I've became very I'll from a very bad depression. I was always an excellent sleeper in my life, until I got really really sick and powerless. Now my sleep is such a mess and I'm so stressed and depressed. I'm fighting for the last 8 months, doctor's are just making me more deperate though. If they just had helped me earlier, I wouldn't have been in this mess. They didn't took me seriously until it was too late, I'm still struggling and if it's going to be like this all my life, then it ain't no life I wanna live. That's why the heavy guns, because my mind is just killing me and the insomnia is exhausting till the bitter end.

cdragin profile image
cdragin

Insomnia is horrible. I also found that all of the "sleep hygiene" tips did next to nothing for me.

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