Pernicious Anaemia Society
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Injecting Vit B 12

Please help me where to buy Ampoules Syringes etc for Pernicious Anemia I’m so tired as only getting every 13 weeks and I was every 8 weeks so I would like to try this myself and is It on UTube ! I know it’s from Germany but can’t find info ! Also have read somewhere of pen like an Epi Pen can anyone help 🤗meant 12 weeks x

29 Replies
oldestnewest

If you look on the right of your post you’ll find related posts.

This one is from a month ago...

healthunlocked.com/pasoc/po...

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Thank you 👍

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Have just been on line looking for B12 Hydroxocobalamin ampoules for you .. 2 German pharmacies that I use are out of stock . So many people are using B12 injections who are not PA patients for weight loss believe it or not — nonsense of course . My care.de have a site in English , but their shipping is expensive if you only want a pack of ten .( €17.00) the cheapest is German amazon ( Amazon .de in English ) Look for Rotexmedica B12 depot . The main one to come up does not deliver to U.K. . Look on the right for the OTHER SELLERS ——- APOTALIS. will sell you a pack of 10 for €11.04 and delivery to U.K. is €7.68 So €18.73 ( £17.07 ). You can buy multiples of that or 100 for €58.53 plus €7.69 shipping . Needles syringes , swabs and sharps box from Medicare. U.K.

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wedgewood How far ahead is the expiry date on the B12 from versandapo.de and mycare.de as I am trying to decide how many to purchase when it comes in stock

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The last batch I got from Versand had an expiry date of 20 months. I inject twice a week, so 100 ampoules was fine.

I’ve read that people have had expiry dates of 24 to 30 months.

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The last lot I got (100) had an expiry date of over 2 years . I read somewhere that if they have been stored correctly i.e. in the dark and under 25c , they will be fine for many more months . I actually keep mine in a warm fridge which is about 12c . At the moment ( this evening ) they are out of stock at versandapo.de . So keep looking .Also out of stock at Bodfeld apotheke .de . They are in stock at mycare.de . but are a bit more expensive than versandapo . (Shipping €17 , but thats not so crucial if you are buying 100 )

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Hello Wedgewood. For what it's worth, MyCare.de got its new stock a few weeks ago when RotexMedica re-started production and the expiry date is April 2021.

I inject daily, so I got a bit panicky when VersandApo ran out recently and they then stopped using English, so I bought the new RotexMedica supply as soon as it became available.

I suppose I could have got some other brand like Pacoe and you are finding retailers with yet more brands of injectable hydroxocobalamin which is great but I was too panicky to be patient!

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I have actually found no end of German online pharmacies that sell B12 Hydroxocobalamin, but most of then do not ship to U.K. , and hardly any have a site in English . I think it would be a good idea if we all mastered the way to do the translating with the google chrome app . ( it’s free of charge ) I’m concerned that B12 has got so popular in the daft beauty clinics , for weight-loss and other s

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Other spurious claims . Also worried about what will happen with Brexit .

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Blue Horizon now do a UK-wide B12 injection service. £75 per shot, but they come to your home or workplace.

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Interesting, I’d no idea . But a bit pricey when you think what it costs us to D.I.Y. Thanks for that though .

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Yes, self injecting is far cheaper, but for cowards like me who still can't bring themselves to pick up a needle, it's a useful service if I get desperate occasionally!

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I would have done that too , when I was feeling so desperate , when my GP would only give me an injection once every 3 months . But then I eventually discovered PAS , thank goodness . I’m sure you could overcome your fear of self-injection with therapy , but then that would be expensive too ! It’s also the convenience of S.I. that’s appealing . No waiting around at the surgery etc .

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I wonder if some enterprising person here in the UK might order a big load of B12 ampoules from Germany and then sell them in smaller quantities on eBay. There's probably a market for this arrangement if it isn't breaking some UK regulations.

In a way, IntraVita already does this with B12 made by Arnika but Arnika's own prices (for any type of B12) are pretty steep to start with.

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Hi Anne1952. Here are some links to websites where you should find all you need...but note wedgewood's comments about the two Germany suppliers being out-of-stock (I've left the links in for future use and Wedgewood has suggested alternative suppliers for B12). Also worth keeping an eye on the German suppliers because they usually re-stock quite quickly.

Here's the links:

Hydroxocobalamin 1mg in 1 ml x 100 (boxes of 10 ampoules also available)

versandapo.de/en/8614/38623...

This has been on special offer and last time I looked, it was out of stock - so here's another supplier, just in case (I've bought from both):

mycare.de/en/online-kaufen/...

Other supplies (syringes, needles, sharps disposal box, alcohol skin wipes):

medisave.co.uk/b-d-2ml-plas... (2ml syringes better than 1ml - easier to draw up B12 and easier to handle than thinner 1ml syringes)

medisave.co.uk/b-d-microlan... Green needles for drawing up)

medisave.co.uk/b-d-microlan... (Blue needles for injecting)

medisave.co.uk/sharpsguard-... (Sharps Bin for disposal of ampoules, needles and syringes)

medisave.co.uk/medisave-pro... (Alcohol injection swabs)

If you look in the pinned posts to the right of the page (tap the view all tab) there's a post that explains how to translate foregin language websites into English.

Good luck 👍

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Hi Foggyme and all jabbers out there...

I bought my last lot of needles from Exchange Supplies (in Dorchester, post anywhere) and they do a wide range of needles, including much finer ones.

exchangesupplies.org/shopdi...

I got the 26 x 1" ones and find them to be plenty strong enough, a lot more comfortable and less likely to cause bruising. There are even finer ones available.

I found this out from a post a couple of months ago by Cetus

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Hello Denise. How do you do that trick of making my name into a clickable link like you did in your message? :)

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You put an "@" in your message, followed by the person's profile name. It's very hit and miss whether it works or not and it usually won't let me carry on writing afterwards - hence why I had to rejig the wording in my message so your name appeared at the end!! 😁

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@deniseinmilden

Thank you. It didn't seem to work this time for me. Oh well.

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@Cetus it did for me!!

And it let me carry on typing today!

Try another time - I think it's just cranky!! 😁

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Oh, no if didn't - I was mistaken.

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Cetus - now it has!

And let me type!

This time I was more careful to press on the drop down menu option... Maybe that was it?

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The dropdown menu can take a long time to appear. (Sure it's slower than it used to be.) If you just carry on typing, the menu might not appear at all. Be patient!

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(This bit was supposed to be after your name but tonight it won't let me carry on typing so I'm adding this at the beginning!). I will try to be more patient as well as precise and see if that makes it more reliable.

Thank you helvella

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deniseinmilden I've looked at this some more. As you type the name, the system looks up all the name matches and shows a dropdown list. If you select the name you want from the list (there may only be one entry) you will get the name inserted in your message as a link.

Hope this works for you too!

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That's right! It does if it's going to! 😁

It wouldn't work at all this morning!

Thank you! x

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This is what you need. I injected for the first time last month. Not as scary as you think!

lucebenterprises.com

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I think this is the same company I get mine but there website is Vitaminb12online.com but my invoices come from the name you posted here.

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Anne, There are some helpful videos here and this place is the same place I get my B12 and all the instructions and site are in English. These videos were invaluable to me when I first started injecting myself. youtube.com/channel/UC5s4dM...

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