Max daily folic acid dose?: Hi what's... - Pernicious Anaemi...

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Max daily folic acid dose?

Salphy profile image
8 Replies

Hi what's the maximum amount of folic acid I can take in 1 day?

I'm prescribed 5mg daily but haven't taken one for weeks. I'm not good at remembering them.

My recent bloods were 8.49 (2.91-50)

What should they be?

I've been feeling rubbish lately and thought it was my thyroid but my results aren't too bad.

So I'm wondering if the 3 monthly injections just aren't enough?

Want to get my folate up ASAP to see if it helps.

Thanks :)

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Salphy
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clivealive profile image
clivealiveForum Support

I would check with your doctor as presumably he prescribed it to you,

When is your next B12 injection due? It would be good to get your Folate level sorted.

I am not a medically trained person but I've had Pernicious Anemia (a form of B12 deficiency) for more than 46 years.

I wish you well.

Salphy profile image
Salphy in reply toclivealive

Yes she did back in January 2017 when started injections but she hasn't mentioned it since. Nor the fact I've probably only ordered it 5 times in the last 16 months.

She never told me why I was taking it or what it did so I think that's not helped me feel the need to take it. It doesn't make me feel any different when I do.

She hasn't mentioned the b12 either even though she knows I'm still fatigued but my levels are high so no chance it could be that in her eyes.

Next injection due July 6th. Thanks Clivealive 🙂

clivealive profile image
clivealiveForum Support in reply toSalphy

Replacing B12 via your injection will lead to a huge increase in the production of blood cells and platelets (which occurs in the bone marrow) and can lead to rapid depletion of folate and iron stores; this can then limit the expected recovery of Haemoglobin. Both iron and folate may be needed.

Your Folate level at 8.49 (2.91-50) may be sufficient but I feel you need to be guided by your doctor in view of the above as it may well be that you need more frequent B12 injections.

Make a list of your symptoms and present this to your doctor and ask him to treat you according to your symptoms and (perhaps) even re-start you on loading doses "until there is no further improvement" according to the N.I.C.E guidelines below. Click on the link, then on "Scenario: Management" and scroll down to "Treatment for B12 deficiency"

google.co.uk/url?sa=t&rct=j...

If possible take someone with you who can validate your neurological symptoms as the doctor is less likely to pooh pooh you in front of a witness.

Salphy profile image
Salphy in reply toclivealive

Thank you. I dont really have neurological symptoms just horrendous fatiguez brain fog, fuzzy vision and air hunger. I have essential tremor but don't think it's related.

I just don't know what else it could be x

fbirder profile image
fbirder

One 5 mg tablet of folic acid is more than 10 times the recommended daily amount. So taking just one should boost your folate levels sufficiently. There’s no need to take more.

Salphy profile image
Salphy

Thank you :)

Salphy profile image
Salphy

Thank you :)

Oliver27 profile image
Oliver27

My folate level is 0.7 despite taking 5mg folic acid daily. My GP has prescribed me 15 mg daily after discussion with my gastroenterologist.

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