I know it’s not strictly pernicious anaemia, but it all seems interlinked...Has anyone else on here been diagnosed with a combination of growth hormone deficiency, hypothyroidism, b12 deficiency, vitamin mal-absorption and amenorrhoea?
Have been told I’m an “anomaly” and am waiting for new medications, but I’m struggling to come to terms with it all and would appreciate ‘talking’ to someone in a similar situation.
Thanks
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Morayshasha
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Dear Morayshasha: Pernicious anemia (PA) and thyroid problems are linked as a poly autoimmune syndrome, but there is little if any research by immunologists. Isn't growth hormone deficiency also an autoimmune condition? I'm sorry I don't have citations for you, but there are general articles I've seen by immunologists that speculate about autoimmune conditions that seem to be connected; they talk about different categories of poly autoimmune syndromes. Polycystic ovarian syndrome (PCOS), with amenorrhea as a symptom, has been suggested as belonging in one of the poly autoimmune categories. I was diagnosed with PCOS in the 1950's, and there has been little advance in knowledge since then. You can find articles via google about poly autoimmune syndrome, but keep in mind that "syndrome" just means that a bunch of symptoms and conditions seem to occur together. It's a way of classifying conditions that aren't always clearly understood yet seem related. There may not be any exact answers, so I encourage you to focus on your strengths rather than the mysteries of your illnesses. I hope that you and your doctors find treatments that support your health and well-being. "Treatments" include exercise, nutrition, etc. -- whatever helps you feel as well as you can. I would not have reached the age of 81 without yoga, meditation, and biofeedback. They helped me get through different treatments, including surgeries. And I still don't understand my illnesses, but I believe they are mostly autoimmune-related.
You and I sound quite parallel! I'm older and post menopause, so I don't have the amenorrhoea, but I do have some RA and that can be quite painful. The other symptoms and health issues you mentioned are either there or being discovered - hypothyroidism, B12 deficiency, malabsorption. My age plays a part in some of the deficiencies, but regardless of the cause, the deficiencies are there and the results are the same. I do SI B12, folate, and glutathione which has helped a lot. The doctor recently started me on Low Dose Naltrexone (3.0 mg works best for me) and I'm having some good results with it. I've been wondering about HGH injections, it might help as it seems to have a positive affect on RA.
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