Pernicious Anaemia Society

Alert...

Since i am having tingling over all body,dizziness,fatigue,anxiety,depression and i didnot get the right diagnosis...with in 6 months .because somewhere i have read that if left untreated it will causes irreversible damage...is it correct..

And recently i got checked up serum b12 the level is 107.7 and know i am daily having mythylcobalamine and folic acid,and what else i have to tell tbe doctor about tbis problem..and to proceed further....really i feeling very bad after this problems comes in my life...

53 Replies
oldestnewest

Ur symptoms strt in 2013 ryt?

Reply

Yes.shalinee...in 2013 September

Reply

I'm sorry too tell you but yes it is correct that if left untreated it can cause irreversible nerve damage. Mine went left untreated for 3 years and ended up in hospital for 5 weeks, so ill that I was given less than 48 hours had I not gone too hospital. Three years on I still cannot feel my feet, parts of both hands and limited feeling in my lower legs.

Reply

So.what should i do,??

Reply

Ur treatment is under neurologist.. Wht ur dr. Says about nerve damage?

Reply

No.he just suggested to take tablets for 3 weeks and meat and fruits and he told that come after 3 weeks...

Reply

I am not yet married...

Reply

Even my hair also faling alot....

Reply

Sandhya_rani have you had your thyroid checked ?

Reply

Yes.it is normal.within the range...

1 like
Reply

Make sure you get regular b12 injections and take your folic acid. Whatever happens don't have them stopped.

Reply

step back.

It is not that having neurological symptoms for six months means they will become irreversible, it is that leaving a B12 deficiency untreated for 6 months after neurological symptoms start CAN result in damage that can't be reversed - many people do make a recovery but healing damage to nerves is a slow process so it can take a very long time - months and even years.

5 likes
Reply

Ok.

1 like
Reply

Do u feel 24/7 dizziness?

Reply

Hai....shalinee...how are you???

Reply

I m nt well.. Today i feel my legs heavy nd neck pain ..

Reply

I am also now feeling leg and foot continuous tingling...but my sincere advice is to be dont panic...

Reply

Do u also feel like heavy legs?

Reply

Tingling continuously

Reply

Sandhya do u know hindi?

Reply

Thoda samajte hain

Reply

Acha 👍😊

Reply

Hai shalinee....how are you?????

Reply

Abhi me mumbai pe hain na job

Reply

Me bank of baroda pe scale 1 officer hu

1 like
Reply

Wow tht is great

Reply

Woyi me ye problem aane ke 2 saal kebaad mila job...bahuth mushkil ye health problem ke bahut fight karke karke....

1 like
Reply

Big salute to u.. Bcz u fight it.. I m going to getting married in Fabruary wth ths health issue i dnt know how i deal wth ths 😑😐

Reply

Even i am also not yet married.mostly next year...but i dont know how i lead my life further with this problem...

Reply

Hey.. Ye problem hmare sth lifetime thode rhegi... Dont be so upset

Reply

I didnt understand this.can you tell me this???

Reply

Exactly what are your symptoms???

Reply

My symptom is now ..heavy legs

Dry mouth

Balnce problem (dizzy)

Anxiety

Sometim fast heartbeat

Neck pain

Reply

Do you have tinglings???

Reply

No but some buzzing feeling in foot at times.. Like some nerves are damage.. Nd especially muscle wekness.

Reply

How old u are

Reply

25

Reply

Khana khya

Reply

Avi khana n khay myn.. Ap btao apn khaya?

Reply

Khaya

Reply

With this problem metally i am degraded a lot...even every minute as of now also...really it us pity on myself

1 like
Reply

I think.one day evrythng will be alrght

Reply

Even i am also waiting for that...

1 like
Reply

I am praying to the god that nobody shouldbe suffering with thus problem...

1 like
Reply

hai shalinee.not now..but the early times of this problem i used to have 24/7dizziness...

Reply

Ur dizziness cure how??

Reply

Yes.what are your symptoms???

1 like
Reply

Hw u cure ur 24/7 dizziness plz tell

Reply

Even i also dont know...but i know that how painful it is...when we feel 24/7 dizziness....mingle with friends...eat fruits....and make a habit that should be continuous routine...

1 like
Reply

In 2013 ur symptom strt when u feel ur dizziness gone?

Reply

2015

Reply

Ok

Reply

I agree that it is difficult to say with certainty that neurological damage is permanent at this point. There is additional information on what to say to a doctor that is located to the right of your post and at the bottom of your post. Your doctor may pay attention to the guidelines that are used by the UK. Most people with your symptoms require injections every other day or everyday. However , there is a slight possibility that that you might benefit from a higher dose tablet or a sublingual. Or maybe a nasal patch or nasal spray if these are available in your country. Also check on your folic acid level. It is hard to take in new information when you are very ill and fearful about your future health. You will read on this forum about people who have had severe neurological symptoms and have recovered sufficiently once they were taking an adequate amount of B12. There is a lot of trial and error involved in determining the right B12 treatment for you. Good luck when you talk to your doctor and hang in there.

1 like
Reply

You may also like...