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Pernicious Anaemia Society
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Can anyone please help me :(

My GP has basically washed her hands of me today as she doesn't know how to treat me or if I get the bloods I requested how to interpret them. She has initially passed the buck to another GP (who I'd asked to run the bloods last Friday and then when I turned up on Monday for them he hadn't sorted anything) and he is calling me tomorrow. They also didn't retest B12 which was the main reason I was going (at her request)

I said I would pay private for my tests but she said they still wouldn't know what to do or how to interpret them. She suggested I see a private heamatolgist but I really can't afford to :( I asked if I could be referred to an NHS one and then if I needed further bloods that I needed privately then I could pay for them then but she just told me to speak to GP tomorrow about it.

She prescribed me oral cyanacobalomin a couple of weeks ago and I didn't start taking them until I had all tests done. She said today she was pleased i hadn't started taking them as would muddy waters more :(

She's fobbed me off for the last 2 months now. If I change GPs it's just going to delay things further and I'm struggling every day to breathe properly :(

Where can I go to get help?

3 Replies

suggest you see what the doctor has to say tomorrow.

not very satisfactory and yes, it may well be an encounter with a chocolate teapot but its a bit difficult to really advise before that is sorted.

On one level its' actually quite positive that you have a GP who is honest enough to own up to the fact that they really don't know what is going on.

Totally understand your frustrations - sort of where I am in trying to resolve some thyroid issues at the moment.


Yeah I guess. I just wish she said that weeks ago and I could have already had a referral to NHS haematologist.

I hope you get your thyroid issues sorted .

I'll see what he says tomorrow and take it from there. Just so frustrating when they won't just treat me according to guidelines!


If she does not know how to treat you she should - - learn, she could read up the BMJ Guidelines as we do. I had the same trouble but found advice here.

A suggestion - Ask for print outs of any blood tests you have and post them here. GP's have a habit of saying "Everything is normal" when it is not.

Cynical - yes but it has happened to many of us.


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