6 loading B12 jabs then go back in a ... - Pernicious Anaemi...

Pernicious Anaemia Society

31,947 members23,085 posts

6 loading B12 jabs then go back in a year...

MissD1503 profile image
12 Replies

So i went to have my first jab last night the nurse was lovely and was concerned about my symptoms but when i asked what was happening with the jabs she said you have 6, 3 a week ect then that's it go back in a year for another test. Can i ask is this normal practice when you have neurological symptoms? I need to know what to say to the dr on Thursday evening if it's needed

Updated post with my results:

My results are:

1st Serum vit B12 level: 184 pg/mL {191.0-663.0}

2nd Serum vit B12 level:: 175 pg/mL {191.0-663.0)

Serum Folate: 9.7 ng/mL {2.4-26.8)

Does anyone know what this means?

Thanks in advance for any advice. xx

Written by
MissD1503 profile image
MissD1503
To view profiles and participate in discussions please or .
Read more about...
12 Replies
Gambit62 profile image
Gambit62Administrator

what is normal when it comes to B12?

It certainly isn't best practice or in line with current guidelines if you are based in the UK.

treatment should be 3x weekly until symptoms stop improving (review at 3 weeks) then maintenance shots ever 2 months - no need to retest unless think treatment isn't being complied with

onlinelibrary.wiley.com/doi...

clivealive profile image
clivealiveForum Support

Hi MissD1503 you could also get your nurse and/or doctor to refer to the N.I.C.E guidelines on the treatment of Vitamin B!2/Folate deficiency.

Click on the link, then on "Scenario: Management" and scroll down to "Treatment for B12 deficiency"

google.co.uk/url?sa=t&rct=j...

Also ask to have your Folate level checked if not already done.

Has your doctor discussed with you the cause of your deficiency?

I wish you well

MissD1503 profile image
MissD1503 in reply to clivealive

My results are:

Serum vit B12 level: 184 pg/mL {191.0-663.0}

2nd one: 175 pg/mL {191.0-663.0)

Serum Folate: 9.7 ng/mL {2.4-26.8)

Does anyone know what this means?

Thanks in advance for any advice. xx

MissD1503 profile image
MissD1503 in reply to clivealive

Thanks Clivealive

Your advise is so needed & so helpful i have printed this off to take to the drs on Thursday.

MissD1503 profile image
MissD1503

My results are:

Serum vit B12 level: 184 pg/mL {191.0-663.0}

2nd one: 175 pg/mL {191.0-663.0)

Serum Folate: 9.7 ng/mL {2.4-26.8)

Does anyone know what this means?

Thanks in advance for any advice. xx

mauschen profile image
mauschen

You are without a doubt B12 deficient and folate is at the lower end of the normal range. Follow Clivealive's advice and ask your Dr to explain the most likely cause. If for example the cause is inflammation, if this is not treated your B12 will most probably sink again.

MissD1503 profile image
MissD1503 in reply to mauschen

Thanks mauschen I will do this :)

mauschen profile image
mauschen

Open a new post and tell us you story, perhaps we can help?

Dee215 profile image
Dee215

You are in exactly the same situation as me. Almost the same results and same treatment. :-(

MissD1503 profile image
MissD1503 in reply to Dee215

Hope your ok Dee215 i have a list & my partner coming to see the dr tomorrow i will make them understand & not brush it under the carpet i am so worried about my neuro symptoms i really hope the damage is curable as i need my energy, memory, speech, and balance to come back it's so worrying knowing that drs are so blasé about it when it could get so serious.

Keep you chin up & keep in touch hope you get sorted soon xx

Dee215 profile image
Dee215 in reply to MissD1503

Just the same. I am a teacher, I need my energy and my intelligence, both of which seem to have disappeared again x

MissD1503 profile image
MissD1503

:( :( :(

You may also like...

6 B12 loading shots, then 6 month wait?

I’m 23 years old, and have been told that my b12 levels are at 147. In my area the nurse said it...

B12 levels 6 months after loading injections

whilst agreeing that my symptoms (gastric, neurological and other) are classic of B12 deficiency -...

Getting back to feeling like i was before my loading jabs...

month to discuss results hopefully nothing wrong. I am however battling yet more symptoms i have...

low B12 and issues with loading dose- do I go back to GP?

menopause but I was instead diagnosed with B12 Deficiency. My serum level was 145- is that...

Blood tests after loading jabs

loading jab on Friday, before hand my b12 levels were 113. The nurse stated that I would need a...