Cormeen32

[cormeen32]

Just wondering if anyone with b12 deficiency has this every time l try to do any amount of work l get very breathless and my temperature goes up

[cormeen32]

Thank u glad to know that you can become breathless l have to sit down to get my breath back don't know why my temperature goes up will look into this

[Foggyme Administrator]

Hi Cormeen32. Like you, I have problems with temperature control. My temrepature can be a low as 35.0 and usually goes up to 37.5, on exertion (I get the breathlessness as well 🤔.

Whilst breathlessness is a common symptom of B12 deficency, temperature dysregulation is not listed as one of the common symptoms however, B12 deficency can affect any system in the body - including the central nervous system, peripheral nervous system, and the autonomic nervous system.

Temperature is controlled by the autonomous nervous system - the ANS -which controls involuntary body movements - like temperature, breathing, bladder function, blood pressure etc. Malfunctions in the ANS can cause autonomic neuropathy (as opposed to peripheral neuropathy), which could cause problems with the functioning of any of those systems.

Here's more information about autonomic neuropathy:

mayoclinic.org/diseases-con...

Note: some of the things in the link sound may sound a bit scary - the scary things are far less common, so please don't start worrying 😉.

So...the temperature control issues could be triggered by problems with the ANS.

But is it B12 deficency - it could be one of the less common symptoms (since B12 defiency is know to affect the nervous system), but there are also other potential causes (the most common ones being diabetis, thyroid conditions, autoimmune conditions, coeliac disease, certain medications, some Infections, injury to nerves in the neck...etc).

In my case, I have B12 deficency but I also have another autoimmune condition (undifferentiated connective tissue disease with features of both Lupus and Sjogrens) so it's not easy to identify which is causing the autonomic neuropathy - time (and perhaps further investigation) will tell 😉.

Since there are many potential causes of ANS dysfunction and/or autonomic neuropathy, its worth discussing this with your GP, rather than just assuming that it's down to B12 deficency.

And certainly, if it gets worse or you have any other symptoms of autonomic dysfunction (listed in the link above) - again, good idea to discuss with your GP (especially if symptoms worsen quickly).

And it's also entirely possible that you may have a 'simple' infection (body temperature does tend to go up - have a little 'peak' - on exertion, if infection is present.

Hope you manage to find some answers...and become cool (or cooler) in all things work and play 😀

Good luck...be interested to hear how you get on 👍

P.s. Further Clarification: it's possible to have symptoms related to ANS dysregulation or dysfunction without having autonomic neuropathy (actual nerve damage) 😀. Autonomic neuropathy can only be diagnosed by extensive testing (depending on the systems involved - details in link above) 👍

[cormeen32 in reply to Foggyme]

Just after talking to Dr giving me another inhaler for the breathing didn't say anything about the temperature going to keep a check if any changes contact him some of my second set of blood test results not back yet just have to wait will keep in touch

[Foggyme Administrator in reply to cormeen32]

Hi Cormeen32. Just wondering why your GP prescribed an inhaler for your breathing issues - do you have asthma?

I'm asking because I was diagnosed with asthma (without any tests) and prescribed inhalers for shortness of breath for years - they didn't work and I didn't need them.

It's only when I was eventually diagnosed with B12 deficency and started B12 that the breathing issues began to resolve (that is, until I developed another autoimmune condition which caused the symptoms to re-occur).

So...the question here is...are you still having your B12 injections and are you having them frequently enough to relieve your symptoms (sorry, no time right now to look at your previous posts to see 🙄).

Good luck xx

P.s. Just to flag - added p.s. clarification information to the end of my original reply 👍

[cormeen32 in reply to Foggyme]

Yes l was diagnosed with asthma years ago last examination indicated my tubes where narrowed l told Dr that l would try it and get back to him if it doesn't work

[Foggyme Administrator in reply to cormeen32]

Ah ha...hope it brings you some relief.

Good luck xx

[cormeen32 in reply to Foggyme]

Don't really expect any great difference

[Foggyme Administrator in reply to cormeen32]

But I'll hope for it nevertheless 🙄.

Good luck...let us know how you get on. 👍

[SusanLMckinney in reply to Foggyme]

b12 deficiency is also an autoimmune problem.

[Foggyme Administrator in reply to SusanLMckinney]

Hi SusanLMcKinney. Just a small calarification...😉

B12 deficency is not always caused by an autoimmune problem...though it can be - and PA is the. It's common cause 😀.

Whilst PA is an autoimmune disease that causes B12 deficency, B12 deficiency can have other causes (i.e. surgical resection of the intestines, gastric bypass surgery surgery, ileostomy, IBS, Heliobactor pylori, certain medications, tapeworm, inhalation of nitrous oxide). And dietary deficency (though this is a rare cause).

So..it is possible to have B12 deficency without having an autoimmune condition.

👍

[Retren in reply to Foggyme]

Greetings Foggyme trust all is well?I also get breathless but attribute it to PA and heart .

[Foggyme Administrator in reply to Retren]

Greetings back at you Rentren. All good here. Sorry to hear you're still suffering with breathlessness 😖.

Take care xx

[pitney]

Your a marvel Foggy, my temperature seems to fluctuate but I just get told I am a bit of a mystery, thanks so much for the info

All the best

[Foggyme Administrator in reply to pitney]

Hi Pitney. Not so sure about the marvel bit (but I do thank you)...just another fellow deficient trying to understand the bodily oddities that can afflict we deficients 😉😀.

Being told you're a bit of a mystery must be quite galling - when what you really need is help and support.

Sigh...I do wish some GP's were more informed about B12 deficency....and I wish it on a daily basis 🙄.

Also - just to flag, clarification added to my original reply re: difference between ANS dysregulation/dysfunction and ANS neuropathy

[pitney in reply to Foggyme]

Thank you foggy

[Dewbuc]

I get breathless and very tired and this is associated with post-menopausal type flushing and after limited exercise. The three symptoms are closely associated for me and could well all be due to B12 deficiency. I'm hoping for great improvement!

[Ashmeadskernel]

I also suffer with heat and temperature control - thank you to Foggeyme for giving a name to this problem. My body is not able to recognise the ambient temperature and I have to rely on my wife to tell me to remove garments if the temperature rises. If my body gets too warm it goes into meltdown and all my B12 symptoms kick in and it will appear as though I have had a stroke. I cannot tolerate temperatures which most would consider 'normal'. Centrally heated rooms are a definite 'NO'. I have been known to collapse in a restaurant solely because the temperature was too warm for my body although perfectly normal for everyone else.

High humidity is also a problem. I am no longer able to go to the swimming pool for this reason, again my body goes into meltdown.

The doctor has done basic thyroid tests which do not show anything abnormal but will not do any further tests. When I eventually see my haematologist I will ask for this to be considered.

So the short answer is YES. PA does cause problems with temperature control although this is not found in the list of symptoms. It is very restricting socially as no one else wants to freeze.

[MoKayD]

Before I started getting my B12 shots I would be completely winded from climbing a couple of flights of stairs. I have also been having temperature control issues. I think mine are linked to menopause not my B12 issues. It's so embarrassing when my face flushes and turns rosy red during a business meeting.

[cormeen32]

I am 64 have had a hysterectomy don't think it is hot flushes when it happens you would think l had just got out of shower

[SusanLMckinney]

Blood does not mature properly and does not carry oxygen very well. About the temperature, I never had that problem as far as I remember, but with pernicious anemia that gets bad enough, you start loosing the protective coating on every nerve in your body, and that goes for the brain, therefore I would suppose it is possible a person could have a problem with the brain regulating the temperature?? TAKE B12 shots . it is harmless and your doctor should not have a problem with you using it. Some of them are resistant, but speak up for yourself.

[SusanLMckinney in reply to SusanLMckinney]

one of the symptoms I had was a feeling that my skin was freezing. I felt like I was laying in snow no matter how hot or cool it was. I could go out in freezing temperatures and it didn't make a difference to me, my skin felt like it was freezing to me anyway. Speaking of cold stuff, I also craved Ice, I ate it until it killed some of my teeth. I would even open the freezer and breathe in large breaths of the freezer air as if it were a drug I craved. Strange I know, but I have a very very bad case before it was discovered. I was being misdiagnosed by what seemed unrelated symptoms. Many of which I didn't even report to doctors.

[ellj]

I too crave ice....good to know I am not totally alone with it.

My body thermostat broke years ago

[cormeen32 in reply to ellj]

I find it so difficult to do any work so tired temperature goes up foggy brain very stressed feeling so low