I have been reading posts on this site for a while now and I think it's the only thing that's kept me sane!! Thank you all for sharing your symptoms, experiences, knowledge and advice as without your posts I would have continued to feel like an obsessed hypochondriac. I apologise for the lengthy post but would appreciate any advice as I have learnt far more from the community here than any NHS websites or GPs.
I began experiencing skin changes just under a year ago with age spots, oily skin and acne becoming progressively worse before I finally requested a blood test to check my hormones and thyroid in April this year. My B12 serum level was 166 at this point but all other results were reportedly normal. I was therefore deemed 'borderline deficient' and told the cause was dietary despite never having followed a vegan or vegetarian diet in my life. My FBC was tested and did not show any signs of anemia so I was sent away to "eat more coco pops" as my GP put it. I did my own research online and ordered the Solgar 1000mcg Methyl sublinguals and began taking around five of these each day. I also began eating fortified cereals, liver pate, eggs and chicken/beef every day. I did only take the sublinguals for a few weeks as I later decided I wanted to push for a diagnosis with my follow up blood serum test. I did continue with the dietary changes for the full three months. My follow up test in July showed a B12 serum level of 234. I had foolishly eaten breakfast on this occasion when on the previous occasion I hadn't so unsure as to whether this affected the results or the 60+ 1000mcg sublinguals I'd taken in April.
I'm now back on the sublinguals and noticing some improvements in my enegy levels. I'm still experiencing the random muscle aches, twitches, headaches, earaches, acne, diarrhea, tingly sensations in my hands, feet and predominantly my scalp/sinus area. I have also now noticed my hair is thinning and I'm feeling more depressed and deflated. I assume that B12 serum tests will now show skewed results due to the sublinguals but wondered if there were any other tests I could request from my GP that would be unaffected by the sublinguals? I have taken 2000mcg for two weeks and then around 8000mcg for the past five days after reading up some more online.
Thank you to anyone who has made it this far! Any advice greatly appreciated. I have a doctors appointment booked and feeling ready to stand my ground!