What to ask.....?: Hi guys, I have a... - Pernicious Anaemi...

Pernicious Anaemia Society

32,318 members23,534 posts

What to ask.....?

Natty91 profile image
2 Replies

Hi guys,

I have a doctors appt booked for tomorrow regarding my B12 levels.

As you can probably see from my previous posts I had a blood test done in October last year and my level was just 120 (range 200-900). I had my loading injections and a follow up blood test in May. I rang the surgery to get my results was was told no further action was required as I was now within range (my levels had increased to just 208)!! So i bookedbthe appt as i personally thought my levels would have increased more after 5 injections. My folte level also dropped from 9.2 which was october and now only 4.9. I am taking follic acid tablets now and a B12 mouth spray. I still feel fatigued and get heart palpitations occaasionlly and the odd tummy upset here and there but other than these things i feel fine.

What questions should i be asking my doctor tomorrow?

Thanks 😊

Written by
Natty91 profile image
Natty91
To view profiles and participate in discussions please or .
Read more about...
2 Replies
Gambit62 profile image
Gambit62Administrator

main q would be what they think caused you to become deficient in the first place. If it wasn't diet then it has to have been an absorption problem.

As B12 is absorbed in the ileum it will have been a problem there. whilst the body may store b12 in the liver it is released in bile into the ileum for reabsorption so this will at best be very inefficient and stores in the liver will be quickly depleted - so you will become deficient again.

BCSH guidelines (unless the absorption problem is treatable (eg h pylori infection) is treatment with maintenance doses. They do not support maintenance treatment on the basis of serum B12 results - further testing is deemed unnecessary unless there is reason to believe there is non-compliance with treatment.

Natty91 profile image
Natty91 in reply to Gambit62

Thank you

Not what you're looking for?

You may also like...

Hi Again - b12 and Peripheral Neuropathy (PN) - its wasnt the Alcohol?

Hi again lovely folks, and a big thanks to those "constant" heroes in this forum; who stick around...

AUGH!

I have been battling for about 10 years with numerous health issues and was finally diagnosed about...

Bittersweet Bonds - Pernicious Anemia and the Doctor-Patient Dance

Not sure if this is any good but as I was hating my doctors it occurred to me how much I need them....

Am I wrong?,

My doctor is trying to make out I'm crazy. Please can people clarify if my understanding is correct...

How does it feel to have too much B12?

I have not SI for 5 weeks now due to anxiety/panic attacks arising after my last couple of...