Pain: In a massive amount of pain right... - Pernicious Anaemi...

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Pain

catherinejordan profile image
6 Replies

In a massive amount of pain right now. Went to GP today with pain right at top of my spine I've had in for about 3 months but for about 3 weeks it's worse every day. He thinks it's spondylitis of the spine but sending me for MRI scan.

Fed up of pain pain pain.

Sorry rant over

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catherinejordan profile image
catherinejordan
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6 Replies
Sleepybunny profile image
Sleepybunny

So sorry to hear you are in pain. It must be exhausting for you.

Link to article on B12 deficiency and spondylitis

ncbi.nlm.nih.gov/pmc/articl...

catherinejordan profile image
catherinejordan in reply to Sleepybunny

Interesting read thank you for taking the time to do that x

exhausted99 profile image
exhausted99

So sorry to hear you are in so much pain - I am the same and have had extreme pain for over a year. I finally had the MRI and they found spinal stenosis. Make sure he offers you good pain relief to start with and then an appointment with a specialist. I am going to see a neuro surgeon soon.

catherinejordan profile image
catherinejordan in reply to exhausted99

What pain relief do they prescribe you? I. At the desperate stage now.

Good luck with your appointment

exhausted99 profile image
exhausted99

Yes I know how you feel. Well my GP's have not really been of much help. First they said my B12 level of 140ng/L was not particularly low and then it took months to refer me to a rheumatologist who hasn't been all that much help but at least she did order the MRI and finally after over a year I have a diagnosis but they refuse to say that low B12 could be implicated in any way. So I have now seen an osteopath who says the treatment (or lack of it) so far is appalling and once she has seen my scans she will refer me to a neuro surgeon. She is concerned that I may also have degeneration of the cord. As for pain relief - to begin with i had nortryptaline which does help many but after 6 weeks it didn't help me at all. So now I have 30/500 Cocodamol which takes the edge off it. However according to the osteopath I'm not taking enough of it and should have the full dose 2 tablets 4 times a day. After the last request for a repeat of it the GP wants to see me again so I am hoping she (a new one) is more understanding. The last one said many people have pain like mine and have to put up with it!!!!

Daisy77 profile image
Daisy77

I used to have severe pain in my spine to the point where I could hardly walk. All my doctor could do was to give me painkillers. But he did suggest that I try a local cranial Osteo. Two treatments and the pain was pretty much gone. I now go monthly to maintain it. She also suggested that I take MSM, chondroitin and that helped.

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