Am hoping someone can advise/help me. I am at my wit's end. I've been experiencing problems with my memory, fatigue, foggy head, brittle nails, tingling hands etc for years, but everything worse since last April - to the point where my concentration, memory and energy have declined rapidly.
I had a full raft of tests done after i had spoken with various people and a couple of people indicated it could be b12 deficiency. My tests came back as 234ng/l for serum vitamin b12 and 84 ug/l for serum Ferritin. Obviously as these are in the normal range for the UK, i was advised there is no problem with my b12 levels.
I am convinced that some further investigation into this would help, but rather than them listen to me, i was refferred to a CFS facility. I went there yesterday and due to being quite distressed - understanding i think waiting ages for a referral, having very little energy and a declining memory at 33, the person who saw me had made their mind up about me as i started speaking. I have had problems with my sleep and anxiety in the past, and i am now understandly depressed through the fact i feel noone is listening to me, and my memory and energy continue to decline - so cried when i met with the specialist - who turned out to be a psychiratrist... He did not look at any of the forms i had filled in and picked at my sadness saying i was clearly depressed - looking at this as the cause and not the effect. I was having issues way before this low mood - but he decidd there and then this was the root cause, which distressed me further.
He told me that my levels were normal and there was no point in me exploring other areas and wasting my time and money on things that would probably yield no results - telling me that i need to be patient and that anti-depressants and physio were the answer. Whilst i am not adverse to taking anti depressants, i truly do not believe this would be treating the cause and left the place feeling trapped by this specialist and my GP. It's important to mention i had depression when i was 18 - and i know what that feels like - i have a great life, but the way i am feeling has brought me down.
I have private medical insurance and so as my GP and this specialist are not willing to help, i want to try and take this on and see a b12 specialist to at least rule out any problem here - can that really hurt? I just want an answer and not more years of waiting and being condemned to being in the system as an anxious person who has created these symptoms.
I need help with how to go about this - i need to find a specialist who would be able to help, as then i would need a GP referral. If i have a name and someone who will agree to see me, my insurance will cover it if my GP at least writes a letter - but i need to find someone, and then i need their co-operation with the referral - which i am also scared will be a problem.
Can anyone help me with this? Has anyone been in this situation and knows the best course of action? please help x