Auto injectors: Looking for advice on... - Pernicious Anaemi...

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Auto injectors

BigCatFreak profile image
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Looking for advice on auto injectors...only found 1 from Union Medico that is around $100 US. Taking Cyanocobalamin shots every other day so any advice on one that is cheaper would be very appreciated.

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BigCatFreak profile image
BigCatFreak
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Gambit62 profile image
Gambit62Administrator

I do remember seeing posts on auto-injectors quite recently

healthunlocked.com/pasoc/po...

but looks like the same one you are looking at and about the same price

there is also this post from a year ago

healthunlocked.com/pasoc/po...

and this from 3 years ago

healthunlocked.com/pasoc/po... - which is looking at an insulin injector - which might be another avenue to explore.

Galadriel1 profile image
Galadriel1

Hi, BigCatFreak , Gambit62 it was me who put a post asking for advice on auto -injectors. I have gone ahead and bought it, it is the one you are looking at from union medico, I am still fighting with my surgery for more regular injections and trying to get over my needle phobia to actually use it, so no real comment on actually using it yet..... I am terrified and also once I go down that road it is final, I have given up on Dr's etc. It comes with 10 needles and syringes to get you started and it is a one-off expense, the syringes seem to be normal ones so don't need to buy from them, they are hideously expensive and you could access your local needle exchange and register that you are taking B12, if we all did that it would really highlight the problem with under-treatment.

Galadriel1 profile image
Galadriel1 in reply to Galadriel1

Just realised you're not in UK, don't know if you have needle exchange facilities..... Sorry, really foggy today.

BigCatFreak profile image
BigCatFreak

Thanks for the replies Gambit62 & Galadriel1 ! I don't know of a needle exchange here in the U.S. but I get my "extra" B-12 from vitaminb12direct.com. They have what I'm use to using...10 ml vials and injection kits that include 23g needles (although I prefer 25g) & alcohol swabs. It's a one stop shop! Ive not used ampoules so breaking glass over something I'm injecting scares me a little. I may have to just bite the bullet & get that auto injector from union medico as I do feel it would help the process. Galadriel1 please post something when you get a chance to use it. Thanks & have a great day! 😸

linda96 profile image
linda96

Sorry, I thought cyanocobalamin was to be avoided in preference to either methylcobalamin or hydroxy cobalamin?

BigCatFreak profile image
BigCatFreak in reply to linda96

Maybe in the UK...I'm in the US & cyanocobalamin is the norm. I have no experience with the other 2 so when I decided to do extra shots above my prescription I stuck with what I know. Other than the other 2 work better & stay in your system longer...is there some other reason I should avoid cyanocobalamin?

linda96 profile image
linda96 in reply to BigCatFreak

Yes most definitely! Please look into this - its 1.15 am in the morning here in U.K. So it's too late for me reply adequately. But please do check it out. Mayo clinic data etc. Iv sent for supplements from US just this year so I know the information is there.

fbirder profile image
fbirder in reply to linda96

Sorry, I thought cyanocobalamin was to be avoided in preference to either methylcobalamin or hydroxy cobalamin?

Nope, there's no good reason why it should be avoided. Some people mistakenly believe that the cyanide moiety, which is released during activation, is harmful. But the amount of cyanide from 1000 ug of cyanocobalamin is about the same as in 10 ml of prune juice or the smoke from 1/5 of a cigarette.

The only people who need avoid it are those with Leber's Optic Neuropathy - a genetic disease (caused by a mutation in the mitochondrial DNA). It affects about 1 in 40,000 - most of them young males. These people should also avoid alcohol and smoking.

linda96 profile image
linda96 in reply to fbirder

Thank you fbirder - I actually nearly tagged you when I wrote it.

Iv never smoked but love prune juice!

BigCatFreak profile image
BigCatFreak

Thanks for the comments! I'm quite comfortable with Cyanocobalamin so I will stick with that for now.

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