Hi I'm new here and looking for some advice as a bit confused and worried.
After a long time wondering what was wrong with me I was told I was b12 deficient in April this year, my level was 68. However I was told that the intrinsic factor test was negative so I don't have pernicious anaemia. I received the loading dose of 5 injections and of course felt completely amazingly better!
They told me to come back in six months to check my levels again and I went back a little early because I was starting to feel the fatigue and fog creeping up on me again. However they told me my levels were normal - I found out that the number was actually 199 and their treatment begins below 180. After a few days of not being able to function at all and sleeping pretty much all day I realised I needed to push for another jab, thankfully my doctor agreed and I received a jab yesterday.
However I'm really scared about my levels dropping again and not being on a plan for regular injections. My symptoms include extreme fatigue, inability to concentrate, short term memory issues, constantly foggy head and depression. As you can imagine my university life was seriously affected and this showed in my exams. I can't deal with just waiting until I feel awful again to beg for another jab. I almost dropped out of university because of how ill I was and I'm really scared of a repeat of that situation.
I guess my main questions are, Is it normal for me to not have pernicious anaemia and my levels regularly drop anyway? Is there any chance the antibody test could have been wrong? Is the antibody test the only way to sort out regular injections with the gp? And does anyone have any experience having to deal with low b12 at university and trying to work with both a gp at home and at uni?
(Also, if it's relevant, my dad has pernicious anaemia - don't know if it is at all genetic?)