My jaw is painful : Hi I don't know if... - Pernicious Anaemi...

Pernicious Anaemia Society

31,935 members23,077 posts

My jaw is painful

catherinejordan profile image
10 Replies

Hi

I don't know if this is related to b12  but injections are making no difference.  My jaw is painful and I can not open  my mouth very wide. Started about two weeks ago. Painful to eat and brush teeth or even to drink from a glass.

Any advice? 

Written by
catherinejordan profile image
catherinejordan
To view profiles and participate in discussions please or .
Read more about...
10 Replies
Gambit62 profile image
Gambit62Administrator

Are you using methyl still? some people genuinely find that methyl does nothing for them.  Does hydroxo when you have maintenance doses have an effect?

The problem could be muscle weakness in the jaw.  I know I used to occasionally have problems with opening up the jaw.

I'd recommend speaking to your doctor - or possibly dentist about it as it could be something unrelated to B12.  There are exercises that you can do to strengthen the jaw muscles if that is the issue.

catherinejordan profile image
catherinejordan in reply to Gambit62

Ty I have made a Doctor appointment for Monday.  It's very painful.  I use hydroxo 

Gambit62 profile image
Gambit62Administrator in reply to catherinejordan

Hope it goes well.  Have you tried keeping a diary of symptoms - sometimes it is difficult to notice when things improve or slide because the changes can be quite subtle.

catherinejordan profile image
catherinejordan

No I haven't but will start one today. Thank you 

NovicePA profile image
NovicePA

I was diagnosed with a jaw condition, can't remember the name but ended up seeing specialist and getting physic exercises for it. Found it improved greatly when my B12 levels were high so there is some more NHS resources wasted due to lack of understanding of B12 def. 

catherinejordan profile image
catherinejordan in reply to NovicePA

I self inject  weekly. . Maybe I need more sigh. .. I just want to feel pain free and well

NovicePA profile image
NovicePA

It is a long trawl isn't it! How are your other vitamin levels? I have recently started taking a really good multivitamin and I must admit I feel a lot better. I have also found improvements when I have made diet changes. Stomach issues are part of my symptoms so I have cut out many FODMAPs which affect digestion and also went on a Candida-free diet (sugar, yeast etc). It was a bit tough but felt a huge amount better and stronger. Also found out that wheat doesn't agree with me even though it doesn't give me digestive issues - it is a weird illness isn't it.

regulake21222 profile image
regulake21222

Hi,

I've experienced the same problem. It comes and goes.

My doctor diagnosed it to be 'trigeminal neuralgia'. B12 shortage can cause lots of nerve problems.

Since I am Dutch speaking, I've searched a link for you in English.

mayoclinic.org/diseases-con...

Gr. R.

catherinejordan profile image
catherinejordan in reply to regulake21222

Thankyou 

catherinejordan profile image
catherinejordan in reply to regulake21222

That's what he diagnosed me.  And gave me Naproxen it's in myjaw now to. I cNt open my mouth very wide and if I yawn I yelp 

You may also like...

What’s the reason for my pains?

New pains doc doesn’t think the PA causes and just says it must fibromyalgia I just don’t know Pain...

Pinching Pain in neck,shoulders and down my arm with b12 deficiency?

I'm having my injection every 12 weeks, every time it's due I experience pinching pain in my neck...

Why are B 12 injections given at my GP surgery So painful

it that the B12 injections I receive in my shoulders at my GP surgery are much more painful that...

Sore teeth/jaw/mouth

been experiencing regular mouth/jaw pain and literally feel like my teeth are sore. My oral health...

Why are my legs painful and burning?!

over it, palpitations and awful painful toes, and now this pain has started, I’m so confused as to...