Hi all, it's been a while since I last posted but I do try to keep up. I apologise now for what will inevitably be a rather long post.
Right now I am so blooming fed up. Had yet another useless visit to my gp today. I have noticed for the past few months I have had a high pitched whine in my ears, so finally a couple of weeks ago I went to see my gp, well it was a locum I saw and he was most helpful. He recommended I get my ears syringed to rule out any problems there. Had that done on Friday last week and high pitched whine was still there and the nurse said oh it's probably just residual water left over. So I thought ok. I'll see how I am over the weekend. Well it's getting worse and really driving me to distraction. It's getting to the stage where I'm having to turn the to up and ask my daughter to repeat things as I don't hear her properly.
Phoned for an appointment and managed to get a last minute emergency one. Well doc was running late as usual but finally I got to go in and see her. I might as well not have bothered. I explained what had been happening so she looks in my ears and says....... Are you sure you had them syringed on Friday?????!!!! Lol well I'm forgetful but not quite "that" bad. So seemingly it's not been done properly so I have to put oil in my ears for another week and have it redone along with my bloods.
My last b12 injection was about 6 weeks ago but before I had it done I asked the nurse to do a b12 blood test along with the others I have. I asked a couple of weeks later what the result was and all the nurse would tell me was that it was in range, she refused to give me numbers or a print out yet I got a print out of all my other blood results as I usually do as I'm on methotrexate.
I decided to broach the subject of my injections with the doc and explained that I am constantly exhausted right now and have all sorts of nerve pain (have confirmed nerve damage in hands and feet) and casually asked if the suspected tinnitus could be connected to the pernicious anaemia? Well I damn near jumped out my chair, she basically barked at me demanding to know just why I thought that. So I mentioned that I keep up with the pa society and research into pa etc and that tinnitus is listed as a possible symptom. Well talk about wrong thing to say, I was told in no uncertain terms that tinnitus has absolutely no connection to pernicious anemia and I've "obviously got my information wrong" and that I receive treatment for my pa anyway so that should be sufficient! and was dismissed and almost pushed out the door. (Almost in tears as it took me a lot to build up the courage to broach the subject).
I am so fed up feeling that I am being treated like I'm an idiot by the medical profession. I have lost so much confidence in the past couple of years due to various other factors, I have difficulty walking due to having rheumatoid arthritis, I am also type 2 diabetic but am having to inject insulin. I enquired not long back about being taught to self inject b12 and was basically laughed out the surgery. (Or it certainly felt that way to me). Im in no way stupid, I'm a qualified clinical hypnotherapist and am planning to do an open university course because im stuck at home a lot of the time right now due to the health issues I have.
I'm very stressed right now as I am being switched from dla to pip and am having to appeal because I am losing my mobility car. I'm 2 points shy of being awarded enhanced rate, which I have had for the past 5/6 years on dla. however my care component has been increased because they have admitted that I need far more help now than I previously did so I'm left feeling confused because if I need more help then shouldn't I be awarded the correct points? Anyway. That's a whole other subject lol.
Sorry for rambling on as per usual I look forward to hearing your opinions on what my next move should be. I am seriously considering self injecting if I can afford it. Was going to before but being on benefits it was just too expensive at the time. I'm still on benefits but have a couple less bills to pay so I'm hoping I have enough spare each month to get the supplies to self inject.