Pernicious Anaemia Society
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Pernicious Anemia

Pernicious Anemia

Has anyone heard of LDN?

I was taking Vital F (From the health food store)

And I take a lot of supplements

And my mothers side has tons of mutations

I was the unlucky one with this disease.

Her and my Dad came from Ireland.

PA is more common in Northern Europe too.

How long should I wait for my blood test?

I'm checking Methylmalonic Acid for B12 deficiency

I was also misdiagnosed with MS.

2 Replies


Are you In the UK?

"How long should I wait for my blood test?"

Which blood test are you referring to?

Have you been diagnosed with PA? Have you had an IFA (Intrinsic factor Antibody) test?

Link about tests for B12 deficiency. Self treating with B12 before you have a test for B12 deficiency may affect the results and could make it more difficult to get a diagnosis. I chose to self treat after trying for years to get treatment from NHS but this has made it virtually impossible to get a formal diagnosis due to having high levels of B12 in my blood.

useful websites


01656 769 717

Useful books

Could it be B12?: An Epidemic of Misdiagnoses

by Sally Pacholok and JJ. Stuart

What You Need to Know About Pernicious Anaemia and Vitamin B12 Deficiency

by Martyn Hooper

"I was also misdiagnosed with MS."

Link about how B12 Defic is misdiagnosed.

I am not a medic just a patient who has struggled to get a diagnosis.


If I were you , I would get some methylcobalamin active vitamin b12 and start taking it . I would get some blackstrap molasses which contains iron , b6 and other nutrients and minerals and also has something in it called trimethylglycine , which binds to homocysteine and gets it out your body . I would get some beet root juice with a high beetroot content in ( if possible , make your own ) Beetroot also contains trimethylglycine but also contains cobalt . Omega 3 would be a good idea and Co Q10 which is a harmless enzyme which is helpful at helping the gut to absorb vits and gives you energy . Give this a try for a week or two and get back to me on it


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