Hi, I am really getting down about this. I have been on B12 injections 12 wkly for years for low B12 but was tested and told I do not have pernicious anaemia. There is family history though as my grandmother did have it.
Anyway my problem is numbness, pain and pins and needles to both hands and feet. This has got progressively worse over 10 years and I am now struggling to cope. I have seen a neurologist who after nerve conduction tests and MRI told me she did not know the cause and discharged me. I am being treated on medication (gabapentin) which is not helping. I do feel symptoms are worse leading up to an injection, my last level was high at 1580 back in January but this was done 2 weeks post injection. I am considering self medicating B12 but the neurologist advised against it. Any ideas?