Hi, I'm new to this forum but desperate for some clarity. I'm a 23 year old female who was diagnosed with Anti-Parietal Cell Antibodies in 2013. I was told by my doctor at the time that this should cause me no concern and I should continue as normal.
For as long as I can remember I have had stomach trouble (IBS like symptoms) and suffered quite severe depression, brain fog, confusion, lack of concentration, anxiety - the list goes on - in the past. I also have Reynaud's Syndrome so my temperature fluctuates and I have facial flushes.
After doing a bit more research into the above condition, I booked a doctors appointment where I was told I had pernicious anaemia but there was nothing to be done at the present time. I tried to pry further but was unsuccessful - the doctor seemed to be lacking knowledge in this field. This happened on three subsequent occasions with three separate doctors with varying opinions. I have been told I do have PA, I do not have it, I will eventually go on to get it and so on and so forth. What are these contradictions about??
With the support of my dad, I have been granted quarterly injections of Vitamin B-12. Prior to injections, my count was 400. I was told this was normal, and have also been told that I do not have PA as the antibodies are yet to destroy all of the parietal cells but that injections will do no harm so I am welcome to them if that is what I choose. It seemed like I had nothing to lose so I've given them a go.
However, nobody seems to be able to tell me what having Anti-Parietal Cell Antibodies actually means, and it is all extremely frustrating.
My stomach issues are very severe - bloating, gas, trapped wind and stabbing pains every day without exception. I am on a strict diet and have been to see both a gastroenterologist and dietician out of sheer exasperation. I do my best to look after my health and am very fit and active. I do not drink alcohol or eat wheat and dairy products and I prepare all of my meals from scratch in a bid to keep the gastro issues at bay.
I also have many symptoms of an overactive thyroid (my mum has type 1 diabetes and had surgery for an overactive thyroid herself) and am going for blood tests this morning. I have discovered that Anti-Parietal Cells can go hand-in-hand with Thyroid dysfunction. It all feels very unfair and I get the impression that embarking on the journey to solving the route to all my internal disarray is not going to be easy. I certainly feel like body is out of whack but I'm so used to it I don't allow it to affect my ability to function.
I would just really like to know what my diagnosis actually means, prognosis and whether there is a connection to the constant stomach and digestion trouble, or whether I am completely misconstrued to link the two together. It just seems somewhat coincidental that I have an autoimmune disorder of the stomach and have much trouble with digestion.
I am consistently assured by professions who first tell me they have zero knowledge of anti-parital cells, that I definitely have IBS and the difficulties are nothing to do with the auto-immune disorder. This seems absurd to me - how can they assure me of this when they don't have the knowledge to confirm this in the first place.
Any responses would be brilliant and duly appreciated.