I will try not to ramble!
A brief history:
Peri-anal abscesses x3 (with blood poisoning)
Glandular Fever (2010)
Vit D deficiency - levels now "normal" but I have been refused a maintenance dose(!)
I have most of the symptoms:
extreme fatigue, poor concentration, confusion, clumsiness, lack of coordination, brittle nails, mood swings, dizziness, bumping into things (covered in bruises!), irritability, panic attacks in public, anxiety, sensitivity to noise and light, diarhea and constipation, sleep disturbance, hair loss, ulcers, bleeding gums, blurred vision and both my sister and mother have been diagnosed with Vit b12 deficiency.
I have a level of over 900 on my most recent test and have shown my GP all the info from this site to support being given the therapeutic dose based on my symptoms. My mother has spoken to Mr Chandry's staff and they have said I should be starting treatment as soon as possible. Long story short, my GP practice has refused to treat me with the injections stating "it is extremely dangerous to treat me and should not be done under any circumstances". My actual GP has read the information and has forwarded a summary of my condition to the local haemotologist to see if they will back her in administering the dose, but this could take a while for a response.
I have had the usual "diagnosis" of CFS, ME and Fibromyalgia, but I am now faced with a fight to get the treatment I desperately need to function. I am currently studying for my post grad finals and am due to start training as a lawyer in Sept but if this continues, this will not be possible and my life will be taken away from me.
Please can anyone let me know any opinions and suggestions on how to proceed.