Hi Just wondering whether anyone can advise the best course of action for my 28 year old daughter please.
She was diagnosed as having ME when 15 and for many years before this used to complain about simply “not feeling very well”. Her main symptoms in the last 5 years are feeling cold, numb hands and feet, headaches, unsteady on her feet, her memory and concentration deteriorating and she sometimes also has a strange sensation of the skin on her arm or thigh feeling as though it is sunburnt.
Last year they thought she might have MS and she underwent a scan and a visual test which luckily was negative, then Myasthenia gravis was suspected and again this test was negative. She has also been tested for Coeliac Disease which I have and again negative, although a gluten free diet has improved her health.
Last year we asked the GP to test her vitB12 and it came back as 227, the GP started giving her injections, we asked if she could have these once a month due to the neurological issues she has and she has been having these.
My question is should the GP do further tests, we have been waiting to see if the results for MS and Myasthenia Gravis came back with anything and now we can rule these out just wondering whether she should have the tests for PA or are we better off just leaving well alone due to her receiving the injections?
Any guidance anyone can provide would be appreciated