Hi, I'm new here. Long story short- I've been sick a while now. I'm 26, and when I was 15 I had my first migraine with aura. Over time I had them more and more, and four years ago I had to stop working because I was having them almost daily. Finally I found out about homocysteine, and begged my doc for a b12 panel. I was right- low ferritin, crazy low folate and b12 'normal' at 220. Anyway, he's happy to keep throwing ferritin and folate at me, and agrees that I've probably been low all my life (symptoms I've had from infancy were miraculously cured- asthma gone, purple hands and feet now Daz white, and my acne also disappeared!) but he won't talk about the b12 and he won't test for PA because I'm in the normal range. I'm convinced it's PA- and it turns out my great granddad was diagnosed and had shots all his life. I have almost every symptom. My aunt had a b12 panel and got exact same results.
Problem is, my doc has had me going in regularly with new problems (all of which are on the PA list- most recently hallucinations, numb/tingling hands, fainting and weird balance problems) and he thinks I need counselling to help me come to terms with the fact that I may never find an answer.
When he said this I actually cried, which didn't help.
I don't need therapy, I need a doctor. I've printed off a bunch of helpful stuff I've found on here which I think will help him understand about b12 levels and convince him to send off for an active b12 kit in london, if not I'll save and have it done privately. But anyway, my question is, does anybody know if my high dose folate and ferritin will have any affect on this test? I've been taking it a couple of months now.
And if I do have the tests privately, will the NHS accept them? I can stretch to the active b12 and the intrinsic factor if I have to, but there's no way I can afford private treatment.
Sorry for the life story, but I'm quite worried, the numbness and the vision loss are starting to make me panic.