Does the symptoms/disease progress more q... - Cure Parkinson's
Does the symptoms/disease progress more quickly with late onset pd?
unanswerable question I'm afraid. Everyone is different. The progress varies hugely.
I will say this though. The more you worry about it the quicker it is likely to get worse. Put a smile on your face and go and have a look at the lovely boats in the marina. Don't let anxiety/worry spoil your day when there is nothing you can do about it.
hi hilary
i have psp adn am in ithe processfo gettign my LPA drawn up for when i cna no longer speak or do anyhthing for myself-
u hav e agood attitgude moving to a smal flat in Brighton
i am moving to the groudn floor where i live at hte moment
since diagnosis in dec 2010 i have got worse re myj speech / everything has speeded up for m
and my falls are (back to )20 times a day
but the STRESS mkae si talll worsoe so as Drew says
do nto let anxiety spoil yoru day - easier said than done - i wa s born a worrrier
and i know!!
;lol JIll
how old r u ?
i am 66 going on 16
Jill, I tried searching PSP but cannot find any info. What do the letters stand for. Thank you.
65 yes positive thinking is the best thing...not dwelling on it..try to carry on as normally as possible...cheers!
I believe Drew is right-we are all different. I was dx a short while ago, I am 62 yrs. I believe, for me, I am going to have to start a list of questions for my doctors because they can best answer some of my questions. I don't believe the drs have all the answers either, simply from what I've learned they cannot apply one answer to questions like yours because we all have different issues with our PD. We have different personalities, emotions, family situations, support or no support aside from a group like this, so...I believe what I have learned from this site so far, is to take lots of notes and continue asking questions. If someone doesn't have an answer at least they have heard you and are trying, like me, to understand the disease and to reach out to others. Together we can learn to cope with issues as they arise. I don't expect anyone on this site to completely understand me, because they only know what I have shared. It is a step in helping myself to understand I am not alone in this and again, as Drew pointed out, we are all so very different in our symptoms and also how we react or don't react to them. Just keep asking and reading. Thanks for the question. Sometimes all I need is to know that there is someone somewhere out there who hears me. I have found that there is always someone on here that can identify or offer a word of encouragememt. Blessings to you.
Well said!
I also was diagnosed recently and have many, many questions. Perhaps this forum will be a good place for answers -- I just joined a week or so ago and today got a "Daily Parkinson's Diary" from HealthUnlocked. The list of topics with discussions included this one. No clue how or when I signed up for the updates.
I don't know the answer to this as everyone is different, but I was given to understand that late onset Parkinsons progresses more slowly than earlier onset.
I think a lot depends on your symptoms. Having a tremor is supposed to be slower progressing, but there again everyone is different.
Just take things one day at a time - the good and the bad. Be strong and exercise as much as you can. Even if we knew the answer, it would not change things.
Unanswerable questions are frustrating, we all have them. Exercise, keep positive thoughts, enjoy each day as much as you can, try to find some peace and comfort in your life. Find new hobbies when unable to do what you used to love doing, and remember its ok to be mad, sad, frustrated, helpless at times, just don't let it take over your life. Or the Parkinson's wins too early! I'm 55 with PD for 5 years, empty nest time that I was looking forward is now different than I expected. But its ok now, been through all the stages of grieving and am living the best that I can.
For what it's worth....I just got a book called "A Patient- Expert Walks You Through Everything You Need to Know and Do the First Year Parkinson's Disease" by Jackie Hunt Christensen. I am finding it very informative.
It helps me to have it for reference...you might try to find it. Hope that helps a bit.
My PD does not progress at all unless I have an injury and have to have general anesthesia (dx at 64 in 2004). Had 5 of those. I have non tremor gait impaired affecting left side. I read it progresses faster for YOPD but younger people are more capable so maybe it only seems that way!?!
As others have already said this is an unpredictable disease. For me it comes down to asking myself why I need to have an answer. Often I find there is something lurking in the background that I that I am worrying about or scared of. And it may well have a more definitive answer! Me, I'm 72. Dxed in '07. On sinemet, low dosage. Actually cut back a bit recently. I am mobile, have a car. My neurologist tells me that my PD is doing well Haha ie slow. Boy do I sound like Pollyanna? But being positive helps me since PD is only 1 of several daunting Dx's I deal with, Fibro/CF, arrythmia, MRSA to give name to some. Thanks for asking. Made me look at myself. This is where the internet fails... a hug would be great right now
Joyce aka gran5+
A big hug to all of you. Thanks for your support. Ithink if we try to keep ourselves as healthy as possible in mind and body and spirit we.ll slow down naturally...(:
How I manage my symptoms, hoping to slow down progression of Parkinson's Disease.
Vision symptoms in PD?
breathing exercise and PD symptoms
There is always hope! (PD as a systemic disease)
