I am still fighting dreadful tremors. I just did a trial of a new med called, Inbrija 42mg Inhailer powder form of carbidopa levodopa. Didn't help. It created unwanted side effects. I guess I will continue on with my Carbidopa Levodopa 25/250mgs. Several times per day. This is pure hell. With this tremor I could be a bell ringer for salvation army at Christmas with no problem. lol.
Tremor Hell: I am still fighting... - Parkinson's Movement
My tremor keeps me from lying down to rest or sleep. It becomes unbearable at bedtime unless I take a dose of Carbidopa Levodopa 25/250 mgs. Actually, my tremor wakes me precisely every 4 hours, to dose myself. Tremor doesn't bother me too much during the day unless my body is still. In addition to CL, movement is, for me, the only thing that relieves the torture of tremor.
GODSPEED! Ive been on 25/250 five times a day, taken every 4 hours, for a year now, also requip three times a day, I still go through 30-45 minutes of the bugs crawling under the skin, cant stay still feeling, makes me want to pull my hair out, also have mild to moderate tremors and mod-severe weakness in my legs.
PCP put me on a low does of ativan .5mg twice a day, its a benzo, in the xanax family of drugs, I hate benzos but it does help get me through the rough five hours of "off" time during the day but it can be very difficult to taper a benzo, I know first hand, went through hell with Xanax a few years ago tapering!
I was having uncontrolled body tremors but my neurologist said it was dyskenisia. She prescribed Amantadine syrup and suggested I might cut back slightly on the amount of carbidopa/levodopa. I had self medicated with more c/l thinking that is what I needed. Both have helped. I also have cbd oil to help me relax and I take that at bedtime. Good luck.
Speaking of uncontrolled movement, i was sitting at my pc a few days ago, hand on mouse and started to doze off (always tired due to insomnia getting 3-4 hrs sleep a nite) anyway was dozing off , all of a sudden my whole arm jolted right across my desktop knocking the mouse and keyboard onto the floor after hitting the wall, lost a couple of keys but survived lol.... yes they said no more c/l at 1250mg a day now, they recommended DBS three months ago, I told them I would rather take 200 pills a month then have that surgery done, I'd rather go home to the lord first......