Thiamine : I’ve joined the thiamine... - Cure Parkinson's

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Thiamine

saraoutwest profile image
26 Replies

I’ve joined the thiamine experiment. 4gm daily. It’s only been a week but a huge difference noted in my energy levels. I don’t have the overwhelming exhaustion in the afternoons. Also noted less jittery nesss as well. Early days. Tremor still annoying as hell.

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saraoutwest profile image
saraoutwest
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26 Replies
Xenos profile image
Xenos

Welcome Saraoutwest :-)

The daily dose recommended by Dr Costantini to RoyProp is 4 000 mg not 4 mg - I guess that's a typo, but just in case...

saraoutwest profile image
saraoutwest in reply to Xenos

Yes 4 gms (grams) thanks :-)

hanifab23 profile image
hanifab23

did you do your blood work or just started on it

saraoutwest profile image
saraoutwest in reply to hanifab23

No blood work. Just started it after determining that high dose b vits are safe. Others in this forum seem to be using withgood success

rhyspeace12 profile image
rhyspeace12

My husband started taking it when he was essentially starving while being psychotic and he is lots better and gained 10 pounds.

ruff1 profile image
ruff1

Hi my husband is thinking about trying thiamine, what brand have you bought and how do you take it each day ?

in reply to ruff1

Solgar thiamine HCL, 500mg, 100 tablets.

2g at breakfast then again at lunch 2g

Toogood profile image
Toogood in reply to

Roy...I have the powder now..it tastes awful...how do you take the powder,,in anything.....

in reply to Toogood

I don't take thiamine HCl in powder form

ruff1 profile image
ruff1 in reply to Toogood

My husband just started on the powder - couldn’t swallow the capsules- he mixes it in to blackcurrent juice , we message the dr in Italy he said that was fine just not Orange, grapefruit lemon or pineapple juice 😀

Toogood profile image
Toogood in reply to ruff1

Thanks for the reply...

Toogood profile image
Toogood in reply to

Has it helped with the shaking...

in reply to Toogood

Sadly no. It has however helped greatly overall

p-oui profile image
p-oui in reply to

How long have you taken it Roy?

in reply to p-oui

It has helped.1 year

PamelaLynn profile image
PamelaLynn

Has anyone using the large doses of thiamine experienced less wakefulness or hallucinations during the night?

cshamb profile image
cshamb

I received the B1 and will start taking it. My neuro, who is very open said try it but she should thought 4g a lot suggested I start with 1x day. What do u think. Also when do you take it? Thank you.

in reply to cshamb

B1 = thiamine HCL

Start at lower dose.

Excess B1 is passed out of the body.

2g breakfast - 2g lunch

kalyan48 profile image
kalyan48 in reply to

anyone taking thiamine and mannitol my syncolein (mannitol ) has just arrived and I am on thiamine ( as per advice from Dr.Costantini) I am wondering - to wait or start syncolein also - could anyone help/ suggest please

alexask profile image
alexask in reply to kalyan48

I take both. B1 first thing with water. Mannitol at 9 am with coffee with a spoonful of coconut oil.

kalyan48 profile image
kalyan48 in reply to alexask

thanks for the feedback , Alex

laglag profile image
laglag in reply to cshamb

cshamb, How has the Thiamine worked for you?

park_bear profile image
park_bear

I take my 2nd dose at dinner. Has not interfered with sleep in my case.

Toogood profile image
Toogood

Do you take the powder..if so..how do you take it..mine tastes awful....

ruff1 profile image
ruff1

Do you take any other B Vits as well , I thought I read somewhere that you should also take a VitB complex ? 😀

KERRINGTON profile image
KERRINGTON

Hi, Are you still on 4gms of B1, AND how are you doing ?

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