Its been crazy since the past one year - mom fell down and fractured her C2 and if the doctors were to be believed then the shutters wound have been shut there and then . But there is a God and we have pulled out of that as her fracture is healing .. but 6 months on bed has been terrible .. one issue after another . Sorry guys , the latest problem is the excessive saliva - with her being this proper person she holds her mouth so tight so that none of it comes out - horrible - when people say she doesn't talk, how can she , her mouth is full of saliva ,most of the time . Sometimes its almost like she is choking , other times its a crazy cough .. breaks my heart into a thousand pieces ..
She also had a NG tube down her throat for 11 weeks - and then we were told by a cousin who is a doc that it should not have been there for more than 2-4 weeks .. it seems to have changed the physiology and psychology of swallowing . Before the accident she was eating without any issues and she had no dysphagia and aspiration issues but now she is on a G tube .
I have left message for her neuro - we would like to see if she is a candidate for botox for the saliva/dysphagia issue
(She Is getting botox for her contractures) also read about isotropic eye drops - right now she is being given hyocamine , cant say its working yet ..
HOW MANY PEOPLE HAVE HAD BOTOX FOR THIS , DOES IT WORK . WHAT ABOUT THE EYE DROPS ? PLEASE ADVISE .
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mymomhaspd
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Yes her swallowing has been affected . We just started hyocosmine , i think it is causing a lot of drowsiness .
Waiting to talk to doc about Atropine or botox .. havent heard from anyone on this site yet. Is no one having issues with excessive saliva where they found a treatment that works ?????
Be careful with anticholinergics such as atropine and hyoscyamine. Parkinson's also degrades the cholinergic system and anticholinergics make it only so much the worse. When I needed to take an anticholinergic it noticeably impaired my walking, which never happened prior to my having Parkinson's. On this topic see also some neighboring posts about the Vielight improving the cholinergic system.
I would suggest as an alternative working on helping her swallow better.
Is best to change one thing at a time so you are not left guessing as to was caused the change. If I had to guess I would guess the hyoscyamine which has been known to cause sleepiness.
Medical marijuana is naturally anxiolytic (calming) and has a xerostomic or mouth drying effect with no harmful side effects. It is available for Parkinson’s in my state and has also an abundance of scientific literature if you sleuth it out proves it’s incredible neuroprotective effects.
The CBC oil affords some of the aforementioned effects however the addition of the stronger THC component which was just voted in here in Florida last year is a better way to go for this disease process if available in your area. Hope this helps in some small way.
Technically speaking hyoscyamine is a natural product from plants like Atropa belladonna and Datura Stramonium and has been used in the 'Bulgarian cure'.
There is a acetylcholinesterase inhibitor called Huperzine A and it has been extensively tested in China though most of the research is in Chinese. It has been mostly used for Alzheimer's disease with some reported benefit. As for its effect on PwP it has not been tested on PD patients. Never the less, it is an acetylcholinesterase inhibitor like hyoscyamine.
Huperzine A, a novel promising acetylcholinesterase inhibitor
I have excessive saliva a night, so I sleep on my sides and put a dry cloth on my pillow so I don't soak the pillow. The danger of sleeping on my back could cause asphyxiation by the saliva by breathinng it in after falling asleep. No meds advised by my PD doc. I take carbidopa levodopa 3 x daily, two different doses. The tremor returns before med time. I hate PD, but I must also deal with the first stages of cirhosis of the liver. I take this torture one day at a time, and try to think positive about what I have had in this life and what I can enjoy, of what is left. I wish you all the best.
i have since found something that has helped i take a tea spoonful of something that might help her its called bisolvon its a chesty forte,,doble strenth.pharmacy medicine.1 tea spoon a few hours before sleep then one tea spoon before you sleep it helped me a lot.regards
well my mom i had it or have it still but not to bad now..its thick and white revolting stuff you bring up the doctor told me there no cure but then i exercise every day and its starting to dissappear as when i have a good walk i get it all off my chest by bringing it up and spitting it up..i gargal every night before i go to bed,most nights now are good..when i get up in the morning some times nothing sometimes a little,,but your mom dont sound as if she could dothat,,make sure she has her pillows are high and make sure she has something by her bed to spit in the higher the pillow the better it is.hope this helps,
Three is a caution though - my dentist was not happy about my use of atropine because the saliva in your mouth is beneficial to good health and prevents decay.
yes but this is different from the saliva in your mouth.until u get it you wont understand it believe me i know.it wakes you up lots of times with white thick stuff.its revolting.i understand what shes going through,
Hello! Yes I have been getting Botox shots in my salivary glands but even at a high doe it has not helped with the excessive saliva! I also have been wearing a Scopolamine patch for a couple of years and that has not helped either!
I chew gum a lot and that reminds me to swallow but it is still very difficult to talk!
I am going to my ENT doctor this week to se what suggestions he may have (other than removing my salivary gland!
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