Low bp: Hi all🙂 I'm really struggling at... - Cure Parkinson's

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Low bp

Bea6 profile image
Bea6
•10 Replies

Hi all🙂

I'm really struggling at mo , I feel so poorly and feel like I'm drowning. Parkinson's nurse has increased my madapar and I feel awful. And my bp has dropped really low ... has anyone else felt like this ?

Best wishes bea

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Bea6 profile image
Bea6
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10 Replies
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999---666 profile image
999---666

WISH I COULD HELP.... SOUNDS LIKE YOU NEED SERATONIN MORE THAN DOPAMINE, BIT OF SUNSHINE, A VALENTINE?

Bea6 profile image
Bea6 in reply to 999---666

I definitely need something ! My old life would be good :)

Bea

999---666 profile image
999---666 in reply to Bea6

YAH, WOULD BE NICE, OTHER DAY I SAID; USED TO DO MY OWN CONSTRUCTION...PLUMBING...ELECTRICAL...(:LIVE IN THE COUNTRY) NOW, I COULDN'T CUT THROUGH A MELON.... MIND YOU MELONS IN THIS ZONE ARE QUESTIONABLE...

Bea6 profile image
Bea6 in reply to 999---666

Oh I know , I was a head of care for the elderly .. I now look and feel like my clients!! Lol oh what curve balls life throws us !

Regards Bea

Hikoi profile image
Hikoi

Bea, sounds like the increase in the meds might be worse than the problems the increase was meant to help! I found my PD nurse was available on e mail or a phone call in such situations. If the increase is causing very low BP (that happens to me ) you probably need the dose/timing adjusted.

I have always taken med increases slowly, often more slowly than the prescribing dr says. It can take some time for your body to get used to changes.

Bea6 profile image
Bea6 in reply to Hikoi

Hi hikoi

Thank u , yes I rang her and we have had to adjust dose and slow down dose to one a week and I'm still struggling with that. I just feel so poorly. It's awful you wonder if u are better off without the drugs but then remember ... I can't move without them !! Tough choice !!

On a up note the sun is shining here this morning x :)

Bea

Hikoi profile image
Hikoi in reply to Bea6

You may tolerate sinimet better. Very best wishes to you.

Motherfather profile image
Motherfather

hi sorry to hear that bea.have you tried azilect.1 per day it helps me as its like a sling shot when u take madapar together,give u a bit of rest when u take the two together.

MacDoodle profile image
MacDoodle

Sending warm wishes, I know the tough times. Hope you have friends to support you . You will find a way through this I'm sure x

park_bear profile image
park_bear

Is Madopar the only PD med you are taking? Is your low BP the same when lying down or only when standing? What is your BP, exactly?

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