Parkinson's Movement
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Making new medicines available sooner - your thoughts?

An area of much current interest to people with Parkinson's is the possibility of speeding up the drug approval process to make drugs available to patients sooner than is currently the case. However, before we can make the case to the regulators, we need to establish what patients really think about the existing process.

We have put together a small survey to establish knowledge and perceptions of the existing regulatory process for new drugs. It is only 12 questions should take between 10 and 15 minutes. It would really help us in our discussions with the regulators to know what patients already understand.

The survey can be found here and we would really appreciate your time on this. Please note that this is only for UK residents since different regulations apply other countries.

If you are a UK resident, please go to

Thank you for your time. 

7 Replies

I'm all in for this. Too bad I live in the US. Would so like to be a part of this movement!


Me too!

1 like




I've completed the survey. There are a couple of points that I found hard to get over:

1. The amount of testing needs to be contingent on the risk (e.g. curcumin, low risk, low testing; new DBS, high risk, high testing).

2. The testing period is likely to be longer for progression slowing therapies than for purely symptomatic control ones.



JonStamford Good news!!

When do people in the US get to take the survey?

Kindly, Eva Gabrielle

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We are hoping to offer an analogous US survey shortly. In the meantime it would be super if as many UK residents as possible completed it. Many thanks.


Just a quick note to say that we will be closing this survey very shortly so, if you are resident in the UK and wish to answer, please do so as soon as you can. Thank you.


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