For my wife
She has recently been diagnosed with this after over 5 years of symptoms, and is now chronic
We are having problems getting the high flow oxygen as recomended by all the groups,
Gp says " neurologist to organise "
Neurologist says " don't know you are the first patient I have dealt with that has this condition"
it is debilatating when the headaches occur, how can we speed this process up ?
Waiting 2 months so far