Do you live in a rural area of Scotland?

[PainConcernProjects]

Pain Concern are looking at what support we can provide for those who live in rural areas.

Please comment below and let us know what support for people in pain would be helpful?

Thank You!

[colourpassion]

Hi, i have CPS from a brain injury 1999. I was the first in UK to receive Deep Brain Stimulator, highly dangerous and experimental at the time. The result was about 30%. I regularly attended Ninewells a four hour drive away. Eventually they gave me a long term use battery.

That battery finally died in 2019. Then everything stopped. Now i cannot get a new battery and most upsetting i cannot find out why?

The same treatment was highly successful for certain Parkinson's patients too, i believe they also are denied new batteries and they have to return to uncontrollable shakes???!!!

My pain level varies from day to day or hour by hour, sometimes a 9.5 level. Who can live with this? About 18 months ago i received a phone call to discuss my pain, tbh i haven't a clue who it was or from where but she did conclude that there was nothing that could be offered to me as i pretty much ran the gauntlet of options in the immediate years after being diagnosed.

Recently i have received an appointment later in May from a Chronic Pain Management Service a 2hr drive away. I live in a very rural spot in the Highlands. There is absolutely no support here.