INVISIBLE

This is the problem ... Nobody can see it ..unless obvious.hence the issues we feel. ...!!!!! Express in detail with as much description as possible of pains your feeling repeatedly!!

[Amk31]

Yep couldn't agree more. Sometimes I would like to read happy stories that people are pain free and happy.

[Bananas5]

What would you call a 'visible' disability? Or chronic health issue?

Curious

x

[Hidden in reply to Bananas5]

I was referring to people who have difficulty getting GP to believe the pain level ..my visible anything from concrete legs unable to move - struggling visibly to throwing up and passing out but not everyone sees it ...

[Hidden in reply to Bananas5]

I was replying to many people who say " they feel invisible" I was giving positive advice ...,!!!!so I thought,we are all struggling with pain ,if we were pain free we wouldn't be on here ,we would be doing something else,!!!!!and people do post positive stories but I guess they don't want to make us feel worse ,I'm off sailing ,how's that ,don't post to me anymore with your negativity.......direct it at some else ,many thanks bye

[Bananas5 in reply to Hidden]

Wasn't meant as any negativity. A simple non confrontational question

As a full time carer, with my own chronic pain, I have an invisible condition too...but it isn't pain.

Many people post on this forum for all sorts of reasons.

Sometimes people forget that their partners and loved ones endure very similar feelings. They too have had to change their lives forever.

x

[Hidden in reply to Bananas5]

I don't know again ,why this is directed at me ... It's a PAIN forum ......

[Bananas5 in reply to Hidden]

Because you replied to me!!!

x

[Hidden in reply to Bananas5]

Not for two days ......thought about it carefully ,please read again .....

[Bananas5 in reply to Hidden]

Sorry but this was your reply to me....

Relaxandbreathein reply to Bananas5

11 hours ago

I was replying to many people who say " they feel invisible" I was giving positive advice ...,!!!!so I thought,we are all struggling with pain ,if we were pain free we wouldn't be on here ,we would be doing something else,!!!!!and people do post positive stories but I guess they don't want to make us feel worse ,I'm off sailing ,how's that ,don't post to me anymore with your negativity.......direct it at some else ,many thanks bye

Reply

[Hidden]

We can only wait and see what becomes available in time , pain is a invisible disease that we all have my pain is in different parts of body from the neck down .

[Amk31 in reply to Hidden]

Yes hope some more stuff to manage the pain. Sick of it at this stage for us.

I'm telling you if a world leader was in chronic pain. They would be finding a cure asap.

[Hidden in reply to Hidden]

On positive, your heads ok x

[Hidden]

Yeah. .we need health professionals with actual experience...I had a GP who's wife had it ,but retired now,only time I didn't feel like I was talking to allien ! I guess it's cos anyone could say anything.sadly .

[Hidden]

Or a proof machine ....

[Hidden]

I have been looking for this ,saw in one of your other posts ... thank you

[Amk31]

Thanks. What back did you have?

[Amk31]

I'm glad it works for u. At this stage, I'm like why some suffer and others dont

[Amk31]

Yep you are right. I think some people are destined to be in pain due to this. Like I think to get through the day got to lie to yourself say it will be ok

[Amk31]

I live in dublin. How much is it?

[Amk31]

Thank you I will read up on it and see.