I have spinal stenosis and since December last year my life has changed completely. Before I was going out several times a week, able to walk to the shops, about a mile, nearly every day. Also active politically and in the anti fracking movement locally. I live in Yorkshire, England.
At the end of last year I started being in a lot of pain and landed in hospital on Christmas Day for 17 days. The Drs don’t know why the pain and lack of mobility suddenly happened but there is no cure. As I am in my mid 70s and due to the problem being caused by different areas of the spine they can’t operate.
I am on pregablin twice daily but it doesn’t seem to be helping now. I can’t tolerate putting the dose above 120mg. I won’t take morphine now as can’t tolerate the side effects. I’m on the waiting list for an epidural steroid injection and to go back to the pain clinic but could be a long wait.
Does anyone else have a problem staying awake and if so how do they cope?
Thanks for being here.