Please Please Please can someone help me.

[Trulysad-76]

Hi, some have followed my journey and although I haven’t been on for a long time some may remember me.

Quick update or recap, I have Disc Degenerative Disease, diagnosed in 2015. I was told from the MRI scan I had a complete collapse of my disc between vertebrae’s 5-6, the stuff inside the disc had seeped out on both sides and I haven’t felt my finger tips properly since. I went to the pain clinic and he gave me completely different results saying it was just bulge nothing more. I was confused so asked why was I phoned up in 2015 and told it was so serious that the specialist surgeon said I needed an operation. After research I declined because I was scared of full paralysis, after the second MRI scan he said he couldn’t find my first scan. I should look forward not backwards, REALLY! To cut a long story short, I missed an appointment and was discharged last year when I was due cortisone injections in one side of my back, 6 injections to be exact.

I went to the doctors today sobbing, ultimately the painkillers I’m on aren’t working so the doctor has put me on weekly morphine patches. But said that’s all they can do, which leaves me no where doesn’t it? I was told to ring the hospital and chase it up? When tbh after explaining to the doctor shouldn’t I of been referred to another hospital.

I’m loosing hope fast, I’m so depressed it’s unreal. Unsure of my future as I can’t keep having to go through this on my own. The guidance I had clearly has been confused with someone else’s MRI. I don’t know what to do anymore, please advise me but please know I am not ready to take the NHS on as in therapy for domestic abuse 😔

[Pinky2233]

spine-health.com/blog/3-ham...

Get a supportive chair with lumbar support that props up your legs

If on the move wear a lumbar support brace and another to correct your posture

A bulging disk is being squeezed

A herniated disk has broken through

If 24/ 7 the body is supported while sleeping, eating, watching Tv and w posture corrected and strengthened with pT done well the body can heal and get you out of pain

It requires moving and focus

The higher the pain Med the harder it is to move and learn the different feelings of pain that come with positive strengthening.

I like the hamstring exercises and comment on moving but excellent pT is required to heal with patience

I wish you best of luck!

[Trulysad-76 in reply to Pinky2233]

Thank you, I’m going to look into this more x

[johnsmith]

See an Alexander teacher. This is not a cure. It is a method to help reduce the stress on the body.

alexandertechnique.com/at.htm

You are going to need to reduce tension in the back muscles. Morphine patches may make the tension worse.

instituteforchronicpain.org...

avma.org.uk/

may be or may not be of help. This is an area of law that may say you have recourse to redress. I just don't know. Losing an MRI scan has prevented proper treatment.

Anybody who works on your back to reduce muscle tension needs to know the contents of the MRI scan.

Go back to the GP tell the GP that you need the MRI scan for the therapist who can help reduce the tightness in your back. No idea if this will work or not.

cortisone injections

verywellhealth.com/are-cort...

In your condition your ligament structure is important. There are suggestions that cortisone injections cause ligament damage.

I wish I could offer better suggestions. Your injury is outside my knowledge.

[Trulysad-76 in reply to johnsmith]

Honestly I can’t thank you and any other comments I receive. I amaze myself because I started collecting all hospital letters but can’t find the letters resulting in an appointment for MRI x

[Emma2017]

If you think you have been mixed up with somebody else’s MRI then you could ask for a copy of the MRI disc to be on the safe site and see another specialist.

But law you are allowed a second opinion.

I have had 3 spinal ops and many injections and denervations and it is important you feel confident in your medical team.

[Trulysad-76]

Hi hun, not a fan of the hun word but seems appropriate to write.

Currently on a bed in AnE as my hearts playing up..............

Thank you for your wise comment, I have today managed to request my health records and MRI scan from virgin care. It’s going to cost me but if any negligence gets proven for a FACT they will have to determine what exactly is going on with my spine and then I can have the treatment.

I was offered surgery by the same surgeon who told me they no longer have my first MRI scan, very weird. As he made me look at the first scan, showed me right down through the skull as well as around.

I was told In writing it was a herniated broad degeneration, basically a rare collapse because the stuff has come out both sides, hence why I can’t feel my finger tips.

Then I have the most quickest MRI at my local hospital and was told I only had a slight bulge on my right side, no narrowing and no compression of the nerves. I know that MRI can’t be mine x

[scholey23]

Hi, I had an accident in 1989 and my back was gone. Lots of different pain killers, physiotherapy and acupuncture, etc. Finally I went under the knife and had two surgeries, a laminectomy and then a spinal fusion of L3,L4, L5, S1. No reduction of pain. After research I was referred to a Pain Consultant who recommended a drug pump implanted in my abdomen which then pumps Morphine to the site of the injury in the spinal column. I had this surgery performed and the difference was like night and day. The relief was considerable. I then left Canada and returned to England where I contacted Medtronic who made the pump and asked where is the best place to go for refills and further consultations. They recommended the Walton Centre in Liverpool. The best Centre for Neurological studies.

I don’t know where you live but if you are close then I whole heartedly recommend that you get your G.P. To refer you there. DO NOT GO BACK TO THE SURGEON WHO LOST YOUR FILMS.