Been through it all and now I'm stuck. I don't know where to turn next. Primary md won't help as far as pain relief. I have severe chronic pain from neuropathy in my hands. Often I talk about no one know anyone else pain. Well today I know for sure. Quick summary. Got diagnosed 11-12 years ago with it in my feet. They are now totally numb. I never went through a painful stage. My hands started about 2 or so years ago. I was in the hospital for edema in August. Ever since then, my hand pain had gotten gradually worse. By September I called my neurologist. Had EMG done again. It changed from small fiber neuropathy to large fiber polyneuropathy. Meaning many nerves. The pain continued to worsen daily. Referred to a pain mgmt clinic. That dr I met for 8 seconds and told me to try S lidocain infusion. I r was reaching at anything. Jan 4 was the infusion. I thought I was in the worst pain ever prior to the infusion. Wrong. 5 hrs later I was screaming in pain and it hasn't stopped to this day. I immediately stopped seeing him and have been in a wild goose chase. Another pain clinic told me they can't help me. I know it's cuz the 1st dr I saw left some nasty notes about me. I live where if you leave 1 pain mgmt dr within the same hospital affiliation, your all done. I'm black listed from ALL of the city/area I live in. Have an appt in Mayto get tested for the CAUSE of my unique neuropathy. But that's May. Appt with psychologist tomorrow to get some emotional help along with being an advocate. We all know being your own advocate doesn't work and isn't enough!!!!! Please, please, I'm up for suggestions as to WHO DO I GO TO NEXT???? Getting told "no" so many times has brought me to a bad place. I am out of energy. I won't live the rest of my life here on earth with this severe pain, can't feed myself, need help bathing, can't cook etc. you get it. It's pure torture.
Btw...neurologist just called and said there's nothing he or any neurologist can do for me. I'm losing my mind