NEVRO HF10 not working now???: Hi all, new to... - Pain Concern

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NEVRO HF10 not working now???

ksimons profile image
6 Replies

Hi all, new to forum and first post trying to find answers. I had the trial for the nevro hf10 back in September and it worked great for my lower back pain to the point I was just about off all pain meds when they took it out. Permanent placement did not happen till end of November and after about 7 day the only pain I had was surgical pain from the placement. Had my follow up visit about 14 days out and all was great. Within a week it was like it got turned off and was back to square one. Was dealing with the rep from the company and going through all the program and nothing worked. Went last week to the doctors office they ran some tests on the device and it checked out fine. X-Rayed to make sure wires are right and they are fine. The rep downloaded some new programs to try but so far not good. Anyone else have this happen? More important did you fine a program that worked?

Thanks

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ksimons profile image
ksimons
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6 Replies
johnsmith profile image
johnsmith

This does not surprise me. You relied on a procedure to switch off pain. It worked. However, switching off pain allowed you to continue damaging structures in the body. Result increased pain. Thus the procedure which was designed for pain at one level will not work when the pain has increased due to body mismanagement.

You need to investigate how do I use my body in a way which minimises damage to body structures. This is a physical learning exercise needing input from people who work with their hands. Think chiropractors, sports therapist, Alexander technique teachers. You need to do work to investigate how you muscles work.

You need to learn to listen to the more subtle aspects of your body's functioning. Think mindfulness and meditation and yoga and t'ai chi here.

Maybe not what you wanted to hear.

Hope264 profile image
Hope264

Thanks for sharing your story. I don't know your situation but welcome to forum. Maybe you could get information from a forum for those living with spinal injuries such as appaerrelysed?' not sure on spelling there. There might be more likelyhood of finding someone with shared experience with your stim? device for the specific information request you've put out there. Good luck.

Cohort profile image
Cohort

I was relieved to find someone in a similar situation as mine. I had a permanent Nevro HF10 installed April 15. Four days ago it suddenly stopped working. I am so surprised and concerned. My pain level is right back to where it was before. I called my doctor's office and Nevro. Waiting to hear back. I'm concerned my dream of pain reduction has been taken away. I'm sure my doc and Nevro will recommend the same things you went through. I'm worried. Can you give an update of your situation?

axecess profile image
axecess

This sounds like I wrote this. Trial was perfect and now permanent implanted, no relief. Back.to where I started 😞 :( 😞

TuxyCat profile image
TuxyCat

Same here trial was great no relief from permanent

TuxyCat profile image
TuxyCat

I feel mislead

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