Back Again: Hello All What seems like many... - Pain Concern

Pain Concern

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Back Again

18 Replies

Hello All

What seems like many decades I was a contributor to this site and I had to move on as As I became involved with other Organisations in the NHS. Now I am returning and hope I can give and receive advice on new and old medical pain treatments. as I still have needs of further pain control methods

B.

18 Replies
Bananas5 profile image
Bananas5

Bob you old rogue. Just hinking about you. Haven't forgotten!

Good to have you back. Missed you.

Pat x

in reply toBananas5

Hello P.

It is lovely to be back, I am trying to behave, notice how I need to sign as I was banned for using names.

I look forward to returning here as it was my first site I attended those what seems, many years ago.

It is wonderful you are still here as I suppose many of the old contributors will not be still around.

i am around for a chat anytime, especially PM How are you both?

B.

Bananas5 profile image
Bananas5 in reply to

Still a few old times around but people pop in and out. Been a bit frought this past 14 days but sorted yesterday when the buyers finally finally signed for the house. Only took 4 months

If people sign themselves Bob or Pat or whatever then I think it is perfectly acceptable to use their name. You can just call me Ma'am

Will send pm

Tis really good to have you back. Really is

x

in reply toBananas5

Thank you Paton

It has been a trial

B.

TamyBjorklund profile image
TamyBjorklund in reply to

Dear B. I have neurological pain in my feet and legs. I am seeing a specialist on monday. Can u please let me know if we can chat or email you? I would like your advice. T.

Cb1963 profile image
Cb1963 in reply toTamyBjorklund

hi then t and I'm not one to stick my nose in,when your asking for advice from mr.b,I to ended up with severe pain in my feet and legs,mainly but also in my shoulders and hands,the symptoms and pains in my legs come in all sorts of different guises,constant pins and needles,burning sensation,pains coming from my toe's going up to my knees feeling liked a red hot poker coming out from my bones,and constant muscle spasms,I was diagnosed with peripheral neuropathy and even now having taken most medications available in still suffering,I'm currently taking 300mg morning and evening pregabalin,30mg of mirtrazapine at bedtime,and I put lidocaine patches on the affected area,and dihydrocodeine tablets,I hope any of these symptoms are similar and strike a chord with you and you want any more information I would be more than willing to share any concerns,I hope you don't feel l was being cheeky and I'm definitely not here to upset anyone,as I felt so alone on this subject,and without the help from this forum I still would be racking my head looking answers,so best of luck with your future appointments

TamyBjorklund profile image
TamyBjorklund in reply toCb1963

Hi Cb. I have all the same symptoms and also pins and needles burning in my toes feet and ankles. I have itching in my legs up to my thighs. I saw a neurologist who labeled it neuropathy. The Neurologist wants me to undego some very expensive tests including nerve conduction , EMG and autonomic reflex testing. They estimate that My out of pocket cost would be in the neighbor of 3 to 4 thousand dollars. I do not have the money. I am working but i simply cannot afford it. The neurologist inceased the dosage of my gabapentine which i have been taking for 11 years for pelvic pain. I am taking gabapentine 1200 mg morning and evening and told me to gradually increase it so i would take gaba 3x a day with a total daily dosage of 3600 mg. The neurologist mentioned Cymbalta if increasing Gaba did not work. Have you or anyone used Cymbalta and what side effects or pain relief did you obtain? Also i dont know if i should have all these tests done? Will my treatment options be better or will my treatment options increase if i do the neurological tests? I asked her but didnt get a clear answer. My neurologist also ordered 5 or 6 blood tests to look for autoimmune disease and diabetes. I had my blood glucose levels checked recently and they are normal so it doesnt really need to be checked again. I work so i will not receive any financial help or discount from the clinic for the neurological tests. I don't know what to do. I am sorry my post is so long. I am depressed. T.

Cb1963 profile image
Cb1963 in reply toTamyBjorklund

well myself personally wouldn't pay for any of those tests,if you've already been diagnosed with neuropathy,unless you feel your condition is getting much worse,as I'm in England our NHS is a non paying service,but saying that it was similar test a bit like the sobriety test that your police use that gave the specialist a better idea of my diagnosis as my brain scan wad normal,I've not had the medication you've mentioned,I've been on the gabapentin and didn't do much for me,unfortunately nerve damage is very difficult to get a cure and even the strongest pain killers really don't have much impact on my condition,I've had my symptoms for over 4 years and nothing has changed with me,and yes it makes you feel very depressed,I can't really say what the future holds except I know the vicious circle of this illness is with me twenty four seven,and its your body that also had to deal with your pain,I always had hoped that it would go away,so I know its not much words of comfort but be prepared for a long journey ahead and try and get your head into a place of acceptance for dealing with this condition,I wish you the very best of luck and a pain free future 😊

in reply toTamyBjorklund

Some DMARD and Biologic medications help people with RA

to reduce the immune system damaging the joints. The problem is they reduce the white blood count so they take bloods

in reply toCb1963

Use a VTENS as a nerve block, you can also use it as an EMS that tones up the nerves and is used by Sportsmen.

Amytrptalene also is good for nerve damage.

Some people us a shower head set on high direct they concentrate the head onto the are that is bothering you. Pain Pens are also used in pain control in a concntrated area

Cb1963 profile image
Cb1963 in reply to

yes tried the vtens machine,but as my muscles are twitching in my legs it caused them to have even more spasms,tried the amytyptalene which gave me cluster headaches,like with any medications its trial and error,but hey thanks very much for your input and hopefully anyone else who sees your write up they can perhaps try this method,thanks

TamyBjorklund profile image
TamyBjorklund in reply to

What is a VTENS and how do you use it? Where can i buy it? Is it good for reducing neurological pain?

in reply toTamyBjorklund

A VTENS is a twin channel multiple frequency TENS unit. See Bodyclock on the web

in reply toTamyBjorklund

Ask for a prescription for the AD AMYTRPTALEAN, that will suppress your nerve pain and damage

BaneBane2424 profile image
BaneBane2424

Hey there. What is your condition? What problems do you have?

PSA Psoriatic Arthritis

Extensive problems with joints and tendon Shieves.

And you ?

b.

BaneBane2424 profile image
BaneBane2424 in reply to

Wow, I never heard about this actually. Mine is a mix of prostatitis/chronic pelvic pain/cystitis. It is a killer, can't live normally, and I'm only 22.

Bananas5 profile image
Bananas5

So if I sign using my name, like many others do, that is not allowed to be used in reply?

Many post, especially newbies start...Hello my name is Miss Piggy and.... So what ever is wrong with using names? Nothing in HU guidelines

x

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