As someone with Autism I can find it really difficult to both notice and accurately describe pain. I was wondering if anyone else is familiar with that and if they found good ways to describe pain, or ways that Drs seem to understand.
This isn't for any particular pain, it'd be interesting to see any answers as then maybe some of us could learn terms off each other, maybe?
I notice Drs use terms that *must* have originated with patients, such as 'fullness in the ears' which to me is really confusing and doesn't sound like a feeling I could understand, even though they believe I probably *do* have that. But I'll use terms they have never heard before, so they can't categorize it and thus seem to just dismiss it most the time.
Examples for me:
Migraine: Ice cream headache, vice, rubber band around head, knitting needle in the eye and through to brain,
Body: Feeling like a shark is gripping my waist (Never said this to Drs as it sounds so silly!), burning sensation but no evidence of trauma, icy sensation on back, bleeding sensation but no sign of trauma, pain kinda like hitting your funny bone but down one leg.
Paraesthesia: Like anything I touch is electric, rubbing my fingers feels like grains of sand is between them,
I'm thinking if Drs knew how to categorise our personal descriptors they'd have a better time of finding a diagnosis but they're like 'Well this isn't in our list of descriptives' even if they're looking for 'brain zaps' and you just said 'brain jolts'.